7 ways to improve cognitive ability while living with Huntington’s

In 2012, my life took an unexpected turn when I was diagnosed with Huntington’s disease (HD). The road to that diagnosis had been long and filled with confusion, but the moment I received an answer, my future felt uncertain.

As part of my treatment plan, I underwent neuropsychiatric testing. The results were devastating: significant cognitive deficits for someone my age.

Questions swirled in my mind. Would I develop dementia? Would I lose my ability to learn, to communicate, to live as the person I knew myself to be?

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My neuropsychologist’s advice caught me off guard: “Go back to school.” I was told to keep learning, to stretch my brain, and to challenge myself. At first, fear paralyzed me. I wasn’t sure if I could handle the demands of academics, but three years after my diagnosis — and already symptomatic — I took a leap of faith and enrolled in college part time.

That decision changed my life. What began as a tentative step toward cognitive engagement turned into an associate degree in science, then a bachelor’s degree in public affairs, and now I’m pursuing a master’s degree — all while dealing with HD symptoms.

People often ask me, “How do you do it? How have you stayed cognitively sharp?”

My answer lies in the seven key strategies I’ve developed along the way. These practical tips have helped me not only survive, but thrive cognitively. Remember: You are never too old or too sick to learn. And most importantly, stop comparing yourself with others. Run your own race.

How to improve cognitive ability

1. Never stop learning. The brain thrives on novelty. Whether it’s enrolling in a class, learning a new hobby, or reading about a topic that sparks your curiosity, keep challenging your mind. For me, taking college courses was a structured way to stay engaged, but you don’t have to pursue a degree to stimulate your brain. Online courses, apps, or even puzzles can provide the same benefits. Start small and celebrate each step.

2. Practice mindfulness. HD can bring overwhelming physical and emotional challenges, which make it harder to focus. Mindfulness practices like meditation and deep breathing help calm the mind and improve concentration. Personally, I’ve found guided meditations and breathing exercises incredibly grounding, allowing me to approach tasks with clarity.

3. Stay organized. Executive function — which refers to planning, organizing, and completing tasks — can be a significant challenge with HD. To counteract this, I rely on tools like planners, digital apps, and sticky notes. Breaking tasks into smaller, manageable steps helps me stay on track. For example, if I have a paper due, I outline it first, then write one section at a time. It’s all about creating a system that works for you.

4. Exercise your brain. Think of your brain like a muscle; it needs regular workouts to stay strong. Cognitive exercises, such as memory games, logic puzzles, or strategy games, have been shown to support brain health. I also enjoy activities that challenge both sides of my brain.

5. Build a support network. Learning with HD is not a solo journey. Having people who believe in you can make all the difference. I’ve leaned on professors, classmates, and family members for encouragement and understanding. If you’re struggling, don’t hesitate to reach out for help, whether it’s a friend who can proofread your work or a teacher who can offer accommodations.

6. Prioritize physical exercise. What does moving your body have to do with your brain? A lot! Physical activity increases blood flow to the brain and supports cognitive function. As physical therapist Christy Ross told the Cleveland Clinic, “Aerobic exercise helps protect your brain and may slow the progression of nerve deterioration in Huntington’s disease.” Even gentle exercises like walking or yoga can make a big impact. For me, incorporating movement into my day helps me feel more energized and mentally sharp.

7. Practice self-compassion. Living with HD means there will be days when you feel frustrated, overwhelmed, or defeated. On those days, remember to be kind to yourself. Progress isn’t always linear, and that’s OK. Celebrate small victories and remind yourself of how far you’ve come.

The power of running your own race

Twelve years after my diagnosis, I’m still learning. I’ve discovered that education isn’t just about degrees — it’s about proving to myself that I’m capable of growth, no matter the obstacles. Living with HD has taught me that we all have our own timeline and our own challenges to overcome. Comparing yourself with others only robs you of joy and progress. Instead, focus on your own race!

Each of these seven tips has played a role in my journey, but the most important lesson is that learning is a lifelong endeavor. Whether you’re picking up a new skill, rediscovering an old passion, or simply taking small steps to challenge your brain, know that every effort counts.

Note: Huntington’s Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Huntington’s Disease News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to Huntington’s disease.