I Don’t Want to Live with a Secret Anymore
I made it down the long, sterile hallway and past the waiting room before bursting into tears. My husband gathered me into his arms ... Read more
Updates
-
-
Cannabinoid Derivatives Show Therapeutic Potential in Mouse Model, But EHP-102 Still Superior
Emerald Health Pharmaceuticals announced that two of its cannabinoid-derived candidates — CBGA-Q and CBGA-Q-Na Salt — showed anti-inflammatory and neuroprotective effects in a mouse ... Read more -
European Initiative Targets Diagnosis, Treatment of Rare Diseases
A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the diagnosis of rare diseases, while ... Read more -
Egypt Leads World in Huntington’s Prevalence, But Lacks Clinical Trials on the Disease, Report Says
Egypt, the most populous country in the Arab world, has the highest prevalence of Huntington’s disease, yet this nation of 100 million is overlooked ... Read more
-
Scientists Discover Two Distinct Symptom Profiles in HD Patients
People with Huntington’s disease may have two different symptom profiles, a cognitive-motor and a ... -
Reaching for the Stars to Find a Cure for Huntington’s
Do you recall the Apollo 11 mission that took place July 16-24, 1969? My ... -
Macedonian Gaucher Activist Publicizes Plight of Rare Disease Patients
The challenges Vesna Aleksovska faced when she decided a decade ago to help fellow ... -
World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients
It wasn’t until Gordana Loleska’s son David was 14 years old that doctors in ... -
Asking for Help Isn’t Always Easy, but Sometimes It’s Necessary
My daughter recently graduated from college. As the date approached, my wife, Jill, and ... -
Encouraging Brain Donations for Huntington’s Research Goal of HDSA and CHDI Foundation Partnership
Encouraging the families of people affected by Huntington’s disease to donate, post-mortem, their brain and ...
Subscribe to our mailing list
Get regular updates delivered to your email box.
Thanks! Please check your email for a confirmation email.
Blocking 2 Enzymes Seen to Reduce Nerve Cell Loss in Fruit Fly Model of Huntington’s
News
A collaboration between researchers at the University of Leicester, U.K., and the University of Maryland School of Medicine, Baltimore, may lead to a way of reversing some symptoms of neurogedenerative diseases, like Huntington’s, by blocking two specific enzymes of the kynurenine ... Read more