Updates

April 19, 2021April 15, 2021
Don’t Believe Everything You Read (Except This Column)

One of the characteristics of a good journalist is being able to digest a lot of information, such as the entirety of a study, and ... Read more
April 15, 2021April 15, 2021
EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US

The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to help adults with a rare disease pursue personal goals through ... Read more
April 13, 2021April 13, 2021
Consortium Will Promote Stem Cell Therapies

A new international consortium, Stem Cells for Huntington’s Disease (SC4HD), has been formed to help facilitate the development of stem cell-based therapies to treat the ... Read more
April 12, 2021April 7, 2021
2 Valuable Caregiving Lessons From My Mother-in-Law

Over Easter weekend, my mother-in-law, Edwina, visited. My wife, Jill, and I are always happy to see her, and as usual, the conversation turned to ... Read more
April 9, 2021April 6, 2021
Huntington’s Has Strengthened My Relationship With My Mom

Having a parent with Huntington’s disease influences my life in many ways, most of which I’m likely unaware of. It influences everything from my plans ... Read more

Subscribe to our mailing list

Get regular updates delivered to your email box.

Thanks! Please check your email for a confirmation email.

May 23, 2016May 23, 2016

Blocking 2 Enzymes Seen to Reduce Nerve Cell Loss in Fruit Fly Model of Huntington’s

News

A collaboration between researchers at the University of Leicester, U.K., and the University of Maryland School of Medicine, Baltimore, may lead to a way of reversing some symptoms of neurogedenerative diseases, like Huntington’s, by blocking two specific enzymes of the kynurenine pathway. ... Read more

Updates

Don’t Believe Everything You Read (Except This Column)

EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US

Consortium Will Promote Stem Cell Therapies

2 Valuable Caregiving Lessons From My Mother-in-Law

Huntington’s Has Strengthened My Relationship With My Mom

Anima Biotech, Takeda Team Up to Develop Small Molecule Treatments

Believing in Miracles Helps Me Overcome Despair

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

Dosing Stopped in Phase 3 Trial of Tominersen for Huntington’s, Roche Says

Focusing Your Energy on Others Brings Inevitable Joy

Mutant Huntingtin Slows Cells’ Protein-Building Machinery, Study Finds

Subscribe to our mailing list

I Keep Moving by Storing Little Boxes in My Head

A Former Huntington’s Caregiver Shares Her Best Caregiving Tips

Women with Huntington’s Experience Worse Symptoms Than Men, Global Study Suggests

An Important Lesson I Learned From Waiting at the Doctor’s Office

Project Seeks Contributors to Depict Life With Huntington’s

Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day

We All Deserve Quality Care: A Deep Dive Into ‘The Soul of Care’

Wearable Devices May Aid Diagnosis, But Need Improvement

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Here’s How You Can Get Involved in Non-clinical Huntington’s Research

HDSA Expands Centers of Excellence Program to 54 Sites

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

My Greatest Dream Is to Eliminate Rare Disease Day

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

Let’s Dance: The Pope and HD Families Meet in a Special Film

Safety Seen in AMT-130 Gene Therapy Trial, Six More Patients to Enroll

An Abundance of Huntington’s Info Awaits at Upcoming Virtual Conferences

Pandemic Won’t Stop Rare Disease Day on Feb. 28

A Valentine’s Day Love Letter to My Dear Wife

UK Guidelines Look to Better Mental Health of Huntington’s and Other Patients

Adira Foundation Arises From Life-altering Accident to Help Those With Chronic Ills

Blocking 2 Enzymes Seen to Reduce Nerve Cell Loss in Fruit Fly Model of Huntington’s

Don’t Believe Everything You Read (Except This Column)

EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US

Consortium Will Promote Stem Cell Therapies

2 Valuable Caregiving Lessons From My Mother-in-Law

Huntington’s Has Strengthened My Relationship With My Mom

Anima Biotech, Takeda Team Up to Develop Small Molecule Treatments

Believing in Miracles Helps Me Overcome Despair

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

Dosing Stopped in Phase 3 Trial of Tominersen for Huntington’s, Roche Says

Focusing Your Energy on Others Brings Inevitable Joy

Mutant Huntingtin Slows Cells’ Protein-Building Machinery, Study Finds

Subscribe to our mailing list

The Power of Kindness Can Change the World for Caregivers

I Keep Moving by Storing Little Boxes in My Head

A Former Huntington’s Caregiver Shares Her Best Caregiving Tips

Women with Huntington’s Experience Worse Symptoms Than Men, Global Study Suggests

An Important Lesson I Learned From Waiting at the Doctor’s Office

Project Seeks Contributors to Depict Life With Huntington’s

Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day

We All Deserve Quality Care: A Deep Dive Into ‘The Soul of Care’

Wearable Devices May Aid Diagnosis, But Need Improvement

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Here’s How You Can Get Involved in Non-clinical Huntington’s Research

HDSA Expands Centers of Excellence Program to 54 Sites

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

My Greatest Dream Is to Eliminate Rare Disease Day

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

Let’s Dance: The Pope and HD Families Meet in a Special Film

Safety Seen in AMT-130 Gene Therapy Trial, Six More Patients to Enroll

An Abundance of Huntington’s Info Awaits at Upcoming Virtual Conferences

Pandemic Won’t Stop Rare Disease Day on Feb. 28

A Valentine’s Day Love Letter to My Dear Wife

UK Guidelines Look to Better Mental Health of Huntington’s and Other Patients

Adira Foundation Arises From Life-altering Accident to Help Those With Chronic Ills

Blocking 2 Enzymes Seen to Reduce Nerve Cell Loss in Fruit Fly Model of Huntington’s