May marks Huntington’s Disease Awareness Month, and organizations worldwide are promoting greater awareness and understanding of the condition, as well as support for patients, families, and caregivers affected by it. Huntington’s disease (HD) is a genetic disorder that causes progressive damage and death to nerve cells in the brain.
Discussion
Mothers are often told that, once they have a child, their heart now lives outside their body. For years, that line sounded like something stitched on a pillow you buy at a Hallmark store and then feel guilty about never dusting. For my wife, Jill, it stopped being a cliche…
Discussion
One of the hardest things Huntington’s disease has taught me is how to accept help without attaching shame to it. I live independently, and I am proud of that. My independence matters deeply to me. It’s not just about paying bills, keeping appointments, or managing my home. It’s about…
Electroencephalography (EEG), a noninvasive test of electrical activity in the brain, may be a useful tool to help track disease progression in Huntington’s disease, as patients tend to show certain characteristic abnormalities that are associated with symptom severity. “EEG may serve as a potential biomarker for early diagnosis and…
Becoming educated and informed about Huntington’s disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your Huntington’s disease journey.
There is no cure for Huntington’s disease yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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