My wife, Jill, who is gene-positive with Huntington’s disease (HD), told me recently that she has to “pump herself up” to do almost anything now. It’s not just the big things, like medical appointments or social events, but also the simple, ordinary tasks that most people move through without…
In the quiet, not-so-often-seen life of a Huntington’s disease (HD) caregiver, there is a commonality among them that even they may not realize. Even within this quiet corner of the HD community, it is truly a loud and profound aspect of these unsung heroes. That commonality is caregiver…
Discussion
Airports can bring out some of my most challenging Huntington’s disease symptoms. The noise, crowds, bright lights, rushing travelers, long security lines, changing gates, overhead announcements, and uncertainty can quickly become overwhelming. What looks like an ordinary travel day to someone else can feel like my nervous system is…
Discussion
Before the end of the year, Arexera Therapeutics is planning to launch a Phase 1 clinical trial testing its experimental therapy ATL-101 in people with Huntington’s disease. According to a company press release, the upcoming trial is expected to test one-time treatment with ATL-101 at various doses,…
Becoming educated and informed about Huntington’s disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your Huntington’s disease journey.
There is no cure for Huntington’s disease yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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