Every year during Huntington’s Disease Awareness Month in May, I think about what awareness really means. It’s not just wearing blue and purple, posting a graphic on social media, or repeating facts about CAG repeats, chorea, and genetics. Those things matter, but awareness has to grow legs and turn into…
Apathy, a common symptom of Huntington’s disease, may present even before the development of hallmark motor symptoms and worsens gradually over time, according to a six-year study of people carrying a Huntington’s-causing mutation. Data also showed that in those without clear Huntington’s symptoms, apathy worsening over time was mainly…
Discussion
In life with Huntington’s disease (HD), our family’s calendar fills up quickly. There are checkups, follow‑ups, and scans that land on days you would rather spend at the park or at a movie. Maybe that’s why, when a birthday shows up on the calendar, our family treats it like…
Discussion
While reflecting on Huntington’s Disease Awareness Month, I am reminded that advocacy isn’t something I do only on a stage, in a column, or at an awareness event. Advocacy shows up in every part of my life, including the moments when I’m simply trying to receive basic medical…
Becoming educated and informed about Huntington’s disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your Huntington’s disease journey.
There is no cure for Huntington’s disease yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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