As Huntington’s Disease Awareness Month comes to a close, my heart keeps returning to one word: gratitude. Huntington’s disease (HD) is serious. It can change the way a person moves, thinks, speaks, works, relates, and dreams. It can place an enormous weight on families long before symptoms even…
Smartphone-recorded speech may provide a simple and less burdensome way to assess disease severity in people with Huntington’s disease, a small study suggests. Researchers found that fully automated analysis of language patterns using speech-recognition and language-analysis tools could statistically predict motor, cognitive, and functional scores with moderate to strong predictive…
Discussion
It was just a glimpse, really. A few seconds on the road. My wife, Jill, who is gene positive with Huntington’s disease, and I were driving home several months ago when we passed a car pulled over on the shoulder, its hazard lights blinking. A police officer stood beside…
Discussion
Every year during Huntington’s Disease Awareness Month in May, I think about what awareness really means. It’s not just wearing blue and purple, posting a graphic on social media, or repeating facts about CAG repeats, chorea, and genetics. Those things matter, but awareness has to grow legs and turn into…
Becoming educated and informed about Huntington’s disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your Huntington’s disease journey.
There is no cure for Huntington’s disease yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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