Newly Diagnosed: You Are Not Alone on Your Journey

Whether you are a patient or a caregiver, it’s important to remember that you are not alone on this journey with Huntington’s disease and that others have been in your shoes. Here’s a collection of some of our columnists’ words that they would like to share to help guide, inspire, and encourage you.

Addressing the Anguish that Comes with Diagnosis

Recalling the moment her mother revealed her Huntington’s diagnosis, columnist Alexus Jones writes that, almost a year later, she is still trying to come to terms with it. It is devastating and scary, but she hopes one day she can talk about it without breaking down.

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My Daughter’s Diagnosis Won’t Defeat Her

Columnist Carlos Briceño recalls when they found out that his daughter’s genetic test for Huntington’s was positive. Her reaction to the news reminded him that she is a force to be reckoned with. Her life will go on, and Huntington’s will not stop her.

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Let Me Share Some Words of Wisdom on Huntington’s

Columnist Steven Beatty has picked up three key pieces of advice on his journey with Huntington’s: Exercise, live for today, and seek new knowledge. He hopes his advice will help others who are traveling the same road.

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I Don’t Want to Live with a Secret Anymore

Columnist Erin Paterson shares how she had kept her gene-positive status a secret and began writing to express her feelings when she felt she couldn’t talk about it. She hopes her words connect with others and remind them that they are not alone.

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