Columns

June 12, 2020June 10, 2020

To Join or Not to Join, That Is the Question

Always Looking Forward – a Column by Alexus Jones, Columns

To this day, I have only talked to two younger people with Huntington’s who weren’t related to me. I know some resources could help me connect to others (like ... Read more

June 9, 2020June 5, 2020

The Real World Is Precious

A Family Tradition - a Column by Carlos Briceño, Columns

On May 21, 1992, MTV aired the first episode of “The Real World.” The introduction to the show went like this: “This is the true story of seven strangers ... Read more

June 2, 2020May 29, 2020

A Caregiver’s Biggest Lesson

A Family Tradition - a Column by Carlos Briceño, Columns

I have pink eye. Again. And I’m extremely happy I got it. I’ll get to why in a moment, but first some background. For the third time since March, ... Read more

May 26, 2020May 21, 2020

Feeling Helpless Vs. Being Helpful

A Family Tradition - a Column by Carlos Briceño, Columns

If you’ve ever experienced an allergic reaction to something, you probably understand why the root word of misery comes from the Latin word “miseria,” which means wretchedness. My dog ... Read more

May 22, 2020May 20, 2020

Pulled Between Two Lives

Always Looking Forward – a Column by Alexus Jones, Columns

Working remotely, while slightly draining, has had its benefits. Being able to sleep in until the last possible second (and maybe sometimes slightly past that) and my ability to ... Read more

May 21, 2020May 19, 2020

Music Transports Me Back to Those Dark Diagnosis Days

Columns, From Where I Stand - a Column by Erin Paterson

My husband and I were driving along a country road with no destination in mind. We needed to escape the city and our lives for the day. We drove ... Read more

May 19, 2020May 15, 2020

The Inexhaustible Reality of Love

A Family Tradition - a Column by Carlos Briceño, Columns

Reality bites. That was the name of a 1994 romantic comedy movie starring Winona Ryder and Ethan Hawke. It’s about four recent graduates finding out how difficult life can ... Read more

May 12, 2020May 8, 2020

Honoring a Huntington’s Family Member Dedicated to Finding a Cure

A Family Tradition - a Column by Carlos Briceño, Columns

May is Huntington’s Disease Awareness Month. While I was starting to write this week’s column, my wife, Jill, received some devastating news: Her second cousin, Pamela Averman, had passed ... Read more

May 8, 2020May 7, 2020

Practicing Self-care and Letting Go of the Guilt

Always Looking Forward – a Column by Alexus Jones, Columns

All of my friends know about my love of wine. The first summer after I turned 21 I was in Maine, and I spent many weekends traveling down to ... Read more

May 5, 2020April 30, 2020

Hugging Is One of the Things I Miss the Most

A Family Tradition - a Column by Carlos Briceño, Columns

The first time I met my wife, Jill, she told me she wasn’t comfortable with “PDA.” Being a smart aleck, I asked her why she didn’t like personal digital ... Read more