Columns

September 22, 2020September 17, 2020

Learning to Expect the Unexpected

A Family Tradition - a Column by Carlos Briceño, Columns

My wife, Jill, and I have not been to the local movie theater in months. It’s been so long that we can’t remember the last movie we saw there. ... Read more

September 18, 2020September 16, 2020

Finding a Therapist to Talk to About Huntington’s Can Be Hard

Always Looking Forward – a Column by Alexus Jones, Columns

This week, I have my first therapy appointment in a while. I hope therapy will give me a structured place to talk about Huntington’s with someone not impacted by ... Read more

September 15, 2020September 15, 2020

Writing Keeps This Caregiver Sane

A Family Tradition - a Column by Carlos Briceño, Columns

I stumbled into my future profession when I took a creative writing class as a junior in high school. I took the class because it was an elective, something ... Read more

September 8, 2020September 2, 2020

Learn How to Party On, Dude

A Family Tradition - a Column by Carlos Briceño, Columns

One of summer’s guilty pleasures is watching mindless movies. On a recent weekend, Jill and I watched “Bill and Ted Face the Music,” which is so egregiously and heinously ... Read more

September 4, 2020September 2, 2020

An Ant Invasion Reminds Me How Important Having My Rock Is

Always Looking Forward – a Column by Alexus Jones, Columns

About a week ago, my boyfriend and I treated ourselves to Qdoba for lunch. I am in love with their food, as most people in my life know, especially ... Read more

September 1, 2020August 27, 2020

As Caregivers, We Can Choose to Be Empathetic and Patient

A Family Tradition - a Column by Carlos Briceño, Columns

My mom is dying. She’s 90, has dementia, can’t walk, yells angrily at times, and lives in an assisted living home, where visitors are frowned upon because of the ... Read more

August 25, 2020August 21, 2020

Telemedicine Makes Life Easier for Patients

A Family Tradition - a Column by Carlos Briceño, Columns

Last year, I wrote about the possibility of telemedicine visits for Huntington’s patients with the Huntington’s Disease Society of America’s Center of Excellence in Chicago. My wife, Jill, and ... Read more

August 21, 2020August 19, 2020

Striving to Be as Carefree as a Kitten

Always Looking Forward – a Column by Alexus Jones, Columns

I have been working from home since March and likely will continue to do so until next summer. Persephone, my first cat, has loved this. She’s always been pretty ... Read more

August 18, 2020August 13, 2020

Living Outside the Box

A Family Tradition - a Column by Carlos Briceño, Columns

If you could go anywhere on vacation, would you take your time planning the perfect trip? Would you look at all of the travel websites in hopes of finding ... Read more

August 11, 2020August 6, 2020

The Enduring Positivity of Huntington’s Patients and Families

A Family Tradition - a Column by Carlos Briceño, Columns

Ever since my wife, Jill, and our daughter were tested and diagnosed as gene positive for Huntington’s disease, I have been impressed with their positive attitudes and outlook for ... Read more

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