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Dealing with anger while living with Huntington’s disease

Anger is a powerful emotion that many people living with Huntington’s disease face regularly. This neurodegenerative disease causes changes in the brain, often leading to mood swings, irritability, and, for some, aggressive behavior. These emotional shifts aren’t a reflection of our character, but a byproduct of how the disease…

5 grounding techniques for finding calm in life with Huntington’s

In a world buzzing with notifications, tight schedules, and endless to-do lists, finding a sense of calm might feel like a distant dream. Being symptomatic with Huntington’s disease is especially challenging when I’m trying to balance my life. Despite having Huntington’s, I’ve adopted the following techniques to help center…

5 questions I always ask doctors about managing Huntington’s

Healthcare for those with Huntington’s disease comes with complexities that often require a collaborative approach. Over the years, I’ve learned the value of being proactive on this journey by asking key questions to ensure that my providers and I are aligned. These questions not only help me understand my…

Genetic disease casts dark shadows over a family tree

Picture a family tree, its branches stretching toward the sky, vibrant with life, yet bearing the deep scars of an inherited gene mutation — one that causes Huntington’s disease (HD). For those unfamiliar, this neurodegenerative illness ruthlessly destroys the mind and body by erasing memories and stripping away independence.

7 self-care tips I live by with Huntington’s disease

Living with Huntington’s disease (HD) can feel like an uphill battle, but self-care can make a meaningful difference in managing its symptoms. The key to a successful self-care routine lies in personalizing it to fit your unique needs and lifestyle. These seven tips have helped me manage my…