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Dear people working to find a cure for Huntington’s disease (HD), I imagine you all have various reasons for seeking a cure. Near the top of your list is probably a love for science and a challenge. Or, perhaps you view HD like George Huntington, whose medical observations of people…

One afternoon in May, I got a call from a number I didn’t recognize, and I rejected it immediately. Given the number of spam calls today, I wouldn’t normally log that in my memory, but then I received a voicemail from the hospital where…

My wife, Jill, and I recently bought a new car. While this might not seem related to the Huntington’s disease community, it actually is, because it involves decision-making, a big topic for families who deal with the disease. I’m thrilled about the new car, as well as another important development…

My wife, Jill, has diagnosed me with attention deficit hyperactivity disorder (ADHD). (Look! A squirrel!) For the record, she is not a doctor, though she wishes she could play one on television. All joking aside, Jill has this uncanny ability to identify people’s issues. I remember the first time…

I’ve been a part of the Huntington’s disease (HD) community since my mom was diagnosed in 1995. I was 9 at the time. The gene mutation responsible for the disease had been discovered two years earlier, and community leaders were excited about the potential of the discovery to lead…

In early May, cybercriminals known as DarkSide launched a devastating ransomware attack on Colonial Pipeline, one of the United States’ largest pipeline systems for refined oil products, which transports around 100 million gallons of fuel daily between Texas and New York. This attack reminded me of Huntington’s disease.

The school year recently ended, which may be good for students and teachers, but not for my wife, Jill. The last week of school is a lot like walking through a car wash for her. Because she is the school secretary, she still works a lot as everyone else winds…

Last weekend, I had a bunch of newly vaccinated friends over to help me paint my new condo. My partner and I had just closed on it two days earlier, and I was excited to make the place feel like our own. We finished the entire condo in…

My wife, Jill, and her phone are like Siamese twins — attached all the time. At least, that’s how it seems. Jill, who has Huntington’s disease (HD), stares into her phone for hours when we are at home, playing puzzle, tile, and problem-solving games such as Tile Master,…

I’ve written before that I was unsure if I was ready to get involved in Huntington’s disease community events. It’s been difficult for me to determine if the emotional cost is worth the risk. A few months ago, I finally…