Columns

July 18, 2019July 16, 2019

I Don’t Want to Live with a Secret Anymore

Columns, From Where I Stand - a Column by Erin Paterson

I made it down the long, sterile hallway and past the waiting room before bursting into tears. My husband gathered me into his arms as I stood there sobbing, ... Read more

July 16, 2019July 15, 2019

It’s All About Respect

A Family Tradition - a Column by Carlos Briceño, Columns

Aretha Franklin sang about it. Rodney Dangerfield joked about it by saying he never got any. The Boston Red Sox got it after finally winning the World Series again ... Read more

July 9, 2019July 2, 2019

Reaching for the Stars to Find a Cure for Huntington’s

A Family Tradition - a Column by Carlos Briceño, Columns

Do you recall the Apollo 11 mission that took place July 16-24, 1969? My wife, Jill, likes to remind me that she remembers reading about it in a history ... Read more

July 2, 2019June 27, 2019

Asking for Help Isn’t Always Easy, but Sometimes It’s Necessary

A Family Tradition - a Column by Carlos Briceño, Columns

My daughter recently graduated from college. As the date approached, my wife, Jill, and I grew increasingly excited. Jill became more focused on all the things that we needed ... Read more

June 27, 2019June 25, 2019

How the Internet Has Changed the Huntington’s Disease Experience

Columns, Gene Positive - a Column by Steven Beatty

The internet has transformed how we access information and learn new things. With the press of a button or a swipe on a screen, we can be instantaneously connected ... Read more

June 25, 2019June 20, 2019

Discovering the Healing Power of Laughter

A Family Tradition - a Column by Carlos Briceño, Columns

When something attacks you, having a good defense to thwart the attack is an invaluable tool in staying alive. In some ways, because they both have been diagnosed with ... Read more

June 20, 2019June 18, 2019

Huntington’s Caregivers Also Must Be Mindful of Their Own Well-being

Columns, Gene Positive - a Column by Steven Beatty

Many occupations are described as being the most difficult job in the world: Firefighting, mining, roofing in a heatwave. Yes, those examples are full of their own risks and ... Read more

June 18, 2019June 17, 2019

Our Marriage Vows Are More Meaningful Because of Huntington’s

A Family Tradition - a Column by Carlos Briceño, Columns

“In sickness and in health, until death do us part.” These words, which were part of our marriage vows, are a somber reminder of our mortality. But who wants ... Read more

June 13, 2019June 11, 2019

Expressing Yourself Through Writing Can Be Therapeutic

Columns, Gene Positive - a Column by Steven Beatty

Remember when people wrote letters? You know, when they sat down with an actual pen and let the ink roll out onto paper. Everyone had their own writing technique ... Read more

June 11, 2019June 7, 2019

Adjusting to Our New Normal

A Family Tradition - a Column by Carlos Briceño, Columns

Learning how to balance life as a caregiver and husband can be delicate. I recently mentioned that my wife, Jill, and I attended a symposium for Huntington’s disease earlier ... Read more