Columns

January 5, 2021December 21, 2020

Focusing on What Is Good and Beautiful This Year

A Family Tradition - a Column by Carlos Briceño, Columns

Hi, 2021. How are you? You have much to live up to. Last year, a pandemic carpet-bombed its way into our lives. As a result, it woke many people ... Read more

December 22, 2020December 17, 2020

Operation Warp Speed Should Inspire a Similar Effort for Rare Diseases

A Family Tradition - a Column by Carlos Briceño, Columns

Whoever named Operation Warp Speed, the U.S. government’s project to produce and develop COVID-19 vaccines safely and effectively, got it right. In doing research for this column, I came ... Read more

December 16, 2020December 11, 2020

Getting Involved in the Huntington’s Community Brings Great Rewards

Columns, Negative to Positives – a Column by B.J. Viau

I have only known one way to live in a family affected by a rare disease, specifically Huntington’s disease (HD). That way is not to sit back and wait ... Read more

December 15, 2020December 10, 2020

The Turn-Negatives-Into-Positives Challenge

A Family Tradition - a Column by Carlos Briceño, Columns

Thick rubber bands seem unbreakable. It takes effort to pull each end. In contrast, breaking a thin rubber band takes little effort. This is how my wife, Jill, summarized ... Read more

December 8, 2020December 4, 2020

Time Is the Best Gift to Share With Others

A Family Tradition - a Column by Carlos Briceño, Columns

So … December is finally here. It’s the last month of the longest year ever, as far as I’m concerned. As I write this, it’s extremely cold and gray ... Read more

December 1, 2020November 24, 2020

Love Is the Mission

A Family Tradition - a Column by Carlos Briceño, Columns

I usually write about what life is like as a caregiver, along with my observations about how Huntington’s disease (HD) affects my family. I’ll do that in today’s column, ... Read more

November 25, 2020November 23, 2020

Would You Want to Know If You Have Huntington’s?

Columns, Negative to Positives – a Column by B.J. Viau

Editor’s note: This column briefly mentions the topic of suicide. Please find resources for help at the end of the column. Unlike many rare genetic disorders, Huntington’s disease doesn’t ... Read more

November 24, 2020November 20, 2020

I’m Determined to Focus on Gratitude

A Family Tradition - a Column by Carlos Briceño, Columns

Two years ago, my wife, Jill, took a genetic test and discovered she has Huntington’s disease. Thanksgiving wasn’t the same that year. Last year, two events occurred that made ... Read more

November 18, 2020November 16, 2020

The Value of Consulting a Genetic Counselor During Testing

Columns, Negative to Positives – a Column by B.J. Viau

As I briefly touched on in my previous column, “Opportunities for a Better Genetic Testing Process,” the testing process in the Huntington’s disease community is a bit like the ... Read more

November 17, 2020November 16, 2020

The Definition of a Caregiver

A Family Tradition - a Column by Carlos Briceño, Columns

At some point in the history of mankind, someone said, “Let’s raise awareness about .” And because “imitation is the sincerest form of flattery,” as Oscar Wilde noted, ... Read more