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One of the hardest parts of living with Huntington’s disease (HD) is realizing that the disease does not only affect movement. It can also affect emotions, reactions, patience, and the way the brain processes stress. Many people see HD through chorea, balance changes, or visible symptoms. But some of…

Huntington’s disease has changed so much about our life, especially for my wife, Jill. Her balance isn’t what it used to be, and falls are a real concern. In a house where stability is fragile, a small creature racing around our feet sounds like the last thing we should invite…

Before Huntington’s disease (HD) became part of my daily life, I thought legacy was something people created at the end of their lives. I thought it was about accomplishments, titles, money, degrees, or what people would say about you after you were gone. I thought legacy was distant, something…

Turn on the news, and it’s easy to witness a jet stream of anger swirling around the main headlines in our world today: wars, spikes in the cost of living, political campaigns, and more. In observing the various levels of displeasure these headlines provoke, I started to wonder, why do…

Living with Huntington’s disease (HD) has taught me that food is not just about satisfying hunger. Food is energy. Food is stability. Food is comfort. And it is one of the ways I care for a body that is constantly working harder than most people realize. When people think…

My wife, Jill, and I recently visited the retail store Party City to pick out decorations for her mother’s 80th birthday. Jill held up a glittery banner and asked if it was too much. I joked that nothing could ever be too much for our family. Jill smiled and agreed.

As Huntington’s Disease Awareness Month comes to a close, my heart keeps returning to one word: gratitude. Huntington’s disease (HD) is serious. It can change the way a person moves, thinks, speaks, works, relates, and dreams. It can place an enormous weight on families long before symptoms even…

It was just a glimpse, really. A few seconds on the road. My wife, Jill, who is gene positive with Huntington’s disease, and I were driving home several months ago when we passed a car pulled over on the shoulder, its hazard lights blinking. A police officer stood beside…

Every year during Huntington’s Disease Awareness Month in May, I think about what awareness really means. It’s not just wearing blue and purple, posting a graphic on social media, or repeating facts about CAG repeats, chorea, and genetics. Those things matter, but awareness has to grow legs and turn into…

In life with Huntington’s disease (HD), our family’s calendar fills up quickly. There are checkups, follow‑ups, and scans that land on days you would rather spend at the park or at a movie. Maybe that’s why, when a birthday shows up on the calendar, our family treats it like…