Columns

Things I’m Grateful For

I tend to be more grateful these days than I used to be, and to help you understand why, I’ll share a little story. I’ll also list several reasons why I’ve been particularly grateful lately. On Christmas Eve, I had to be at work at 10:30 p.m. to shoot photos…

Even Caregivers Need Help Sometimes

Happy New Year! Now that 2021 is in the rearview mirror, I have a simple wish for 2022: a cure for Huntington’s disease, which my wife and daughter are gene-positive for. As much as I hope for that, I also spend a lot of time thinking about taking…

The Importance of a Spinal Tap in HD Research

I traveled last month to the University of Wisconsin-Madison to participate in an observational research study called PREVENT-HD. I’ve written about the importance of participating in trials, and the purpose of the PREVENT-HD study is to develop tools to find and track subtle, but measurable, changes in behavioral,…

Mental Videos Make the Memories Come Alive

Years ago, as watching videos on the internet became more popular, I realized I needed to broaden my skills as a print journalist to compete and thrive in a rapidly developing multimedia world. So, I took a course at the Poynter Institute that taught me how to tell a…

Love Is Stronger Than Huntington’s Disease

By the time you read this, an important day in my family’s life will have occurred: Alexus, our only daughter, got married on Nov. 25. She and her now husband, René, met in their senior year of college and have built a beautiful life together since then. They decided to…