Columns

November 15, 2019November 13, 2019

I Can’t Help Feeling Guilty About Living Far from My Mom

Always Looking Forward – a Column by Alexus Jones, Columns

While traveling to a recent event on the T, greater Boston’s public transport system, I felt as if I were in a generic movie about a city-dwelling 20-something. I ... Read more

November 12, 2019November 8, 2019

United in Grief, We Are Huntington’s Strong

A Family Tradition - a Column by Carlos Briceño, Columns

Author’s note: This column is for anyone with Huntington’s disease or their family and friends. Dear Huntington’s community: Many of us don’t know each other, but we are bound ... Read more

November 5, 2019October 30, 2019

Why Blend In When You Were Born to Stand Out?

A Family Tradition - a Column by Carlos Briceño, Columns

The first time I met Jill’s father was interesting. I hadn’t met someone with Huntington’s before, but Jill had told me all about it. Huntington’s was a movement disorder, ... Read more

November 1, 2019October 29, 2019

I Want to Freeze Time to Live Forever in the Precious Moments

Always Looking Forward – a Column by Alexus Jones, Columns

Some moments are so perfect that you wish time would stop so that some part of you could live in that moment forever. These moments can be significant milestones, ... Read more

October 29, 2019October 25, 2019

The Story Behind My Family’s Habit of Saying, ‘I Love You’

A Family Tradition - a Column by Carlos Briceño, Columns

We live in a golden age of communication with many ways to talk to each other — email, text, and if you’re old like me, by phone. We have ... Read more

October 25, 2019October 23, 2019

My Dating Experience as a Huntington’s Gene Carrier

Always Looking Forward – a Column by Alexus Jones, Columns

I was recently invited to talk about my column on Help 4 HD Live!, a weekly podcast for the Huntington’s disease community. The host, Lauren Holder, asked me how ... Read more

October 24, 2019October 22, 2019

Thanks to My Dad’s Ideal Retired Life, I’m Less Afraid of My Future

Columns, From Where I Stand - a Column by Erin Paterson

Every time we visit my dad, we go for a walk on the beach. On a recent cool September afternoon, the four of us wandered along the water’s edge, ... Read more

October 18, 2019October 17, 2019

How Climate Change Matters in the Search for a Huntington’s Cure

Always Looking Forward – a Column by Alexus Jones, Columns

In a previous column, I wrote about how I believe it is likely for a medical breakthrough to happen by the time I am old enough to have symptoms. ... Read more

October 15, 2019October 11, 2019

I Am Learning to Embrace Sadness

A Family Tradition - a Column by Carlos Briceño, Columns

I put my car in reverse and looked at my wife, Jill, in the back seat, trying valiantly to stay positive. I looked at my daughter, Alexus, in the ... Read more

October 11, 2019October 9, 2019

Addressing the Anguish that Comes with Diagnosis

Always Looking Forward – a Column by Alexus Jones, Columns

As I’ve mentioned in previous columns, my mother received her Huntington’s diagnosis almost a year ago. My parents waited to tell me until I arrived home for winter break from ... Read more