Columns

January 17, 2020January 15, 2020

I Can Hope for a Huntington’s Cure Because I Get Vaccinated

Always Looking Forward – a Column by Alexus Jones, Columns

The Centers for Disease Control and Prevention (CDC) recommends that children get their first dose of the measles, mumps, and rubella (MMR) vaccine between 12 and 15 months. Of ... Read more

January 14, 2020January 10, 2020

Caregiving Is a Marathon

A Family Tradition - a Column by Carlos Briceño, Columns

My mother-in-law, Edwina, visited us right before Christmas. I’m proud to say that I’m her favorite son-in-law. (That’s a family joke. I’m her only son-in-law.) Her husband, Ken, died ... Read more

January 10, 2020January 8, 2020

Yeah, It Could be Worse, but So What?

Always Looking Forward – a Column by Alexus Jones, Columns

“It could be worse” is a sentiment I hear fairly often. It’s often said after I express sympathy for someone’s situation — such as when someone worked until 10 ... Read more

January 7, 2020January 2, 2020

Cultivating Patience Requires Patience

A Family Tradition - a Column by Carlos Briceño, Columns

Patience doesn’t just happen. It takes work. Would you enter a weightlifting competition, run a marathon, or perform stand-up comedy without planning and practicing? You probably wouldn’t. So why ... Read more

December 20, 2019December 18, 2019

How Huntington’s Affects My View of Christmas

Always Looking Forward – a Column by Alexus Jones, Columns

Every family, regardless of religion or background, has at least one time of year that is special to them. A time when they get together and celebrate, repeating rituals ... Read more

December 19, 2019December 17, 2019

Having a Role Model Helped Me to Heal

Columns, From Where I Stand - a Column by Erin Paterson

I was an emotional mess when I first met Jeff Carroll at a Huntington’s disease conference. My recent gene-positive diagnosis was on my mind. I couldn’t talk about it ... Read more

December 17, 2019December 13, 2019

Simplicity Is Key to My Wife’s Happiness

A Family Tradition - a Column by Carlos Briceño, Columns

My wife is extremely low maintenance. For instance, she’s allergic to chocolate and flowers, so she doesn’t want either for Valentine’s Day. Even if she weren’t allergic, she still ... Read more

December 13, 2019December 12, 2019

Learning from a Friend’s Perspective on My Huntington’s Status

Always Looking Forward – a Column by Alexus Jones, Columns

For this column, I interviewed my best friend about her thoughts on Huntington’s. Here are my questions and her answers: During your freshman year, you had a lecture on ... Read more

December 10, 2019December 6, 2019

Could Telemedicine Improve Quality of Care for Huntington’s Patients?

A Family Tradition - a Column by Carlos Briceño, Columns

My wife, Jill, excels at many things. She’s an excellent cook, gift giver, and advice dispenser. She also excels in her dislike of visiting a doctor’s office. As I’ve ... Read more

December 6, 2019December 4, 2019

Sometimes Distracting Yourself Is a Form of Self-care

Always Looking Forward – a Column by Alexus Jones, Columns

Over this past holiday, my wonderful parents got me the Nintendo Switch and the new Pokemon game (specifically Shield, because it had cooler Pokemon). Yes, I am aware this ... Read more

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