Columns

October 18, 2019October 17, 2019

How Climate Change Matters in the Search for a Huntington’s Cure

Always Looking Forward – a Column by Alexus Jones, Columns

In a previous column, I wrote about how I believe it is likely for a medical breakthrough to happen by the time I am old enough to have symptoms. ... Read more

October 15, 2019October 11, 2019

I Am Learning to Embrace Sadness

A Family Tradition - a Column by Carlos Briceño, Columns

I put my car in reverse and looked at my wife, Jill, in the back seat, trying valiantly to stay positive. I looked at my daughter, Alexus, in the ... Read more

October 11, 2019October 9, 2019

Addressing the Anguish that Comes with Diagnosis

Always Looking Forward – a Column by Alexus Jones, Columns

As I’ve mentioned in previous columns, my mother received her Huntington’s diagnosis almost a year ago. My parents waited to tell me until I arrived home for winter break from ... Read more

October 8, 2019October 3, 2019

While Uncomfortable, It’s Important to Discuss Worst-case Scenarios

A Family Tradition - a Column by Carlos Briceño, Columns

Some things that my wife, Jill, handles — such as paying the cable bill, for example — are tasks that I need to know how to do. Huntington’s disease ... Read more

October 4, 2019October 2, 2019

The Cognitive Dissonance of Having a Parent with Huntington’s

Always Looking Forward – a Column by Alexus Jones, Columns

I’m a logical person. I tend to look at the numbers and make a rational assessment of a situation. But I also want to be happily surprised rather than ... Read more

October 1, 2019September 27, 2019

Health Insurance Is Confusing but Critical to Understand

A Family Tradition - a Column by Carlos Briceño, Columns

My wife and I are fortunate to have health insurance, which pays for some of our medical bills, but not all of them. My eyes glaze over when I ... Read more

September 27, 2019September 26, 2019

Writing My Thoughts About Huntington’s Disease Is Cathartic

Always Looking Forward – a Column by Alexus Jones, Columns

I am amazed at the differences in the ways our brains work and the variations that exist in our thought processes. My roommate and I were discussing this subject, ... Read more

September 24, 2019September 19, 2019

Finding the Path that Leads from Feeling Helpless to Hopeful

A Family Tradition - a Column by Carlos Briceño, Columns

I recently experienced two occasions of complete helplessness. The first involved my dog, Baby Girl. She has big ears, a normal characteristic of cocker spaniels, which often get infected. ... Read more

September 20, 2019September 18, 2019

Why I Dislike Being Called ‘Strong’

Always Looking Forward – a Column by Alexus Jones, Columns

In my previous column, I talked about the day I received my diagnosis. I got through the following weeks by telling myself that nothing in my life had changed, ... Read more

September 19, 2019September 16, 2019

Thank You, Michael J. Fox

Columns, From Where I Stand - a Column by Erin Paterson

My husband and I were standing in a line of hundreds of people waiting to meet Michael J. Fox, one of the stars of the “Back to the Future” ... Read more