Columns

No Matter Your Hardships, Today Is a Great Day to Be Alive

I’ve lost two moms in my lifetime. My biological mom, Debbie, who was with me for the first 23 years of my life, passed away in 2011 after a 15-year battle with Huntington’s disease (HD). When she was diagnosed, we learned about the progression that inevitably would lead to…

As Caregivers, We Can Choose a Positive Mindset

It’s all about the mindset. I suggest caregivers work on developing a positive mindset. It makes life much easier and more joyful. For instance, waiting in line is not fun for me. But I have learned to pray while I wait. What used to be annoying is now positive.

The Turn-Negatives-Into-Positives Challenge

Thick rubber bands seem unbreakable. It takes effort to pull each end. In contrast, breaking a thin rubber band takes little effort. This is how my wife, Jill, summarized the current state of the world the other day. It seems like we all start out as…

Time Is the Best Gift to Share With Others

So … December is finally here. It’s the last month of the longest year ever, as far as I’m concerned. As I write this, it’s extremely cold and gray outside. Oh, sun, where are you? Warm weather, where are you? End of the pandemic, where are you? The holidays…

Love Is the Mission

I usually write about what life is like as a caregiver, along with my observations about how Huntington’s disease (HD) affects my family. I’ll do that in today’s column, too, but I’ve added a creative twist by writing a short play. It has two characters:…

Would You Want to Know If You Have Huntington’s?

Editor’s note: This column briefly mentions the topic of suicide. Please find resources for help at the end of the column. Unlike many rare genetic disorders, Huntington’s disease doesn’t have an approved treatment regimen that will halt, stop, or slow disease progression. However, it is relatively simple to undergo a…