Guest Voice

In the quiet, not-so-often-seen life of a Huntington’s disease (HD) caregiver, there is a commonality among them that even they may not realize. Even within this quiet corner of the HD community, it is truly a loud and profound aspect of these unsung heroes. That commonality is caregiver…

Fear. Everyone has it. Everyone has that something they’re afraid of. I have many — of heights, of what tomorrow holds, all of it. But when you’re in a Huntington’s disease (HD) family, fear feels amplified. Ever since we got my husband Nathan’s HD diagnosis 10 years ago,…

This article was provided by our partner, HD Reach. It has been reviewed by Bionews for accuracy and relevance. The views and opinions expressed are those of the author and do not necessarily reflect the views of Bionews or Huntington’s…

This article was provided by our partner, HD Reach. It has been reviewed by Bionews for accuracy and relevance. The views and opinions expressed are those of the author and do not necessarily reflect the views of Bionews or Huntington’s Disease News. Recently, genetic counseling students reached out to…

I hate Huntington’s disease (HD) with a burning, blinding passion. I hate the worry it causes, what it’s taken from our loved ones who are fighting this monster, and that I’ve had to give up the life I expected to live with my husband, Nathan, who has HD, and…

I met my husband, Nathan, in 2009, when his sister and one of my best friends from high school decided to set us up. I’d just gone through a breakup, and Nathan was going through a divorce. But the setup didn’t take. Fast forward to a Christmas Eve party two…

Ken To lives in Hong Kong and is a primary caregiver for his mother, Then Dji Fong, who was diagnosed with Huntington’s disease in 2003. He is also at risk for inheriting the disease. Advocacy is an important part of Ken’s life. He witnessed the founding of the Chinese Huntington’s…