Columns

Words of Encouragement Bond Us to Other HD Families

In a recent column, I wrote about the high emotional cost my wife, Jill, and I face by writing a weekly column about her journey being gene-positive for Huntington’s disease (HD). It doesn’t help that our daughter is also gene-positive. Jill wondered if our weekly column was…

‘Congress, Hear Our Plea! Pass the HD Parity!’

Shouting is a fantastic way to get someone’s attention. That’s why I propose we shout to get the attention of the U.S. Congress. Because May is Huntington’s Disease Awareness Month, my wife, Jill, who is gene-positive for Huntington’s disease (HD), came up with a video challenge to raise awareness…

Acceptance of Suffering Can Lead to Transformation

The weather where I live in Maryland has been cold, gray, and rainy lately. A steady diet of warm, sunny weather remains a distant memory. The full glory of spring is on hold, as many trees and flowers have restrained themselves from blossoming into a full palette of colors. Days…

FDA Patient Listening Session Set for Huntington’s Disease

When I stepped away from my role as board chair of the Huntington’s Disease Youth Organization in 2020, I knew it wouldn’t be long before I found my next Huntington’s passion project. The passion in me is deeply rooted and originally created through my mom, who passed from Huntington’s…

The Power of a Smile and Kind Words

I recently shared with my wife, Jill, a saying I read in a store: “A smile and some kind words can really change someone’s day.” Jill smiled and said she knew the power of that saying because she had witnessed it years ago. The story she told me unfolded during…