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Waving Goodbye to Toxic Relationships

For more than two years, I have shared my family’s journey with Huntington’s, including learning about the disease, living through my wife and daughter testing gene-positive, and working to accept their diagnoses. This time, I want to share some advice from Jill, my wife: Let go of people who are…

‘Punting’ for a Cure for Huntington’s

My wife, Jill, and I celebrated our wedding anniversary last month. We like to joke that we don’t keep track of the years because it seems like yesterday when we got married. Some years, as a gift, I like to write her something romantic or funny. This year, I decided…

A Road Trip I Would Only Take for My Mom

I’ve found that having a parent with Huntington’s disease makes you value every moment with them, even in unfortunate situations. For instance, normally I wouldn’t volunteer to go on a road trip from Massachusetts to Illinois, but I would for my mother. As I’ve previously written, my mom was…

Why I Choose to Be Like Water

“Parting is such sweet sorrow,” Shakespeare once wrote. And don’t I know it. Recently, the big news in my home is we’re moving to the East Coast, as my wife, Jill, and I want to move closer to our daughter, who lives in Boston, and other family…

The Squeaky Wheel Gets the Grease

Dear people working to find a cure for Huntington’s disease (HD), I imagine you all have various reasons for seeking a cure. Near the top of your list is probably a love for science and a challenge. Or, perhaps you view HD like George Huntington, whose medical observations of people…

Good Decision-making Is an Important Trait for Caregivers

My wife, Jill, and I recently bought a new car. While this might not seem related to the Huntington’s disease community, it actually is, because it involves decision-making, a big topic for families who deal with the disease. I’m thrilled about the new car, as well as another important development…

Look! A Squirrel!

My wife, Jill, has diagnosed me with attention deficit hyperactivity disorder (ADHD). (Look! A squirrel!) For the record, she is not a doctor, though she wishes she could play one on television. All joking aside, Jill has this uncanny ability to identify people’s issues. I remember the first time…