Sometimes our best-laid plans go sideways, and what emerges is better than anything we could’ve orchestrated. That’s what I learned the year my wife, Jill, was diagnosed with Huntington’s disease (HD). When your world gets turned upside down, you grasp for anchors — those memories of better times that…
Living with Huntington’s disease (HD) brings unique challenges — physical, emotional, and mental. Navigating its complexities while maintaining a sense of peace and presence in my daily life hasn’t always been easy, but mindfulness has become an essential tool in my toolbox. Following are five ways I practice mindfulness…
My wife, Jill, has battled being gene-positive with Huntington’s disease (HD) with remarkable grace and resilience. Despite her difficulties, she continues to find joy in the simple things, such as the companionship of a furry friend. Our beloved dog, Baby Girl, passed away in 2022, leaving a…
Anxiety is a frequent companion for many of us living with Huntington’s disease (HD). Whether it’s the overwhelming stress of managing symptoms, navigating social interactions, or even planning for the future, anxiety can creep in and overshadow our daily lives. Over the years, I’ve developed strategies to manage…
My wife, Jill, has Huntington’s disease — a rare, neurodegenerative illness that can seem to rule her life. One of the hardest things to deal with is Jill’s nearly constant worrying about going places. It’s difficult to…
Music has always been more than just sound to me. It’s a lifeline. Living with Huntington’s disease (HD), I’ve faced physical challenges, emotional hurdles, and moments of deep introspection. During the most difficult times, music has been my refuge, helping me manage my mood, find peace, and lift my…
The weight of my family’s history often feels like a shadow I can’t outrun. My mother battled bipolar disorder while my father fought his demons with alcohol. I lost both of my sisters far too young, and now my beloved wife, Jill, and our daughter, Alexus,…
Living with Huntington’s disease (HD) presents rare challenges, including managing symptoms that can affect physical, mental, and emotional well-being. One of the often overlooked aspects of maintaining health with HD is cultivating good sleep hygiene. When sleep is interrupted or inadequate, the ripple effects on our bodies and minds…
After my wife, Jill, was diagnosed with Huntington’s disease (HD) in 2018, we gained a new level of appreciation for people affected by terrible storms and other natural disasters. The rare disease she inherited made us realize, in deeper ways, that what she’s experiencing as her neurodegenerative illness progresses…
In 2012, my life took an unexpected turn when I was diagnosed with Huntington’s disease (HD). The road to that diagnosis had been long and filled with confusion, but the moment I received an answer, my future felt uncertain. As part of my treatment plan,…
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