A Family Tradition - a Column by Carlos Briceño

vote, white coat syndrome, protective, show, details, unexpected, party on, choose, outside the box

Carlos is a journalist in the Midwest, who through the grace of God has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

The Turn-Negatives-Into-Positives Challenge

Thick rubber bands seem unbreakable. It takes effort to pull each end. In contrast, breaking a thin rubber band takes little effort. This is how my wife, Jill, summarized the current state of the world the other day. It seems like we all start out as…

Time Is the Best Gift to Share With Others

So … December is finally here. It’s the last month of the longest year ever, as far as I’m concerned. As I write this, it’s extremely cold and gray outside. Oh, sun, where are you? Warm weather, where are you? End of the pandemic, where are you? The holidays…

Love Is the Mission

I usually write about what life is like as a caregiver, along with my observations about how Huntington’s disease (HD) affects my family. I’ll do that in today’s column, too, but I’ve added a creative twist by writing a short play. It has two characters:…

I’m Determined to Focus on Gratitude

Two years ago, my wife, Jill, took a genetic test and discovered she has Huntington’s disease. Thanksgiving wasn’t the same that year. Last year, two events occurred that made me feel as though Mike Tyson had punched me in the gut: My daughter took a genetic test and found…

The Definition of a Caregiver

At some point in the history of mankind, someone said, “Let’s raise awareness about [topic A].” And because “imitation is the sincerest form of flattery,” as Oscar Wilde noted, someone else said, “Hey, if they can raise awareness about [topic A], let’s celebrate our favorite topic.” Now, January is…

Fasting as a Means of Solidarity

When my sister died in a tragic accident a year ago, grief caused me to lose my appetite. As a result, over the next two months, I lost around 13 pounds. I found myself being content with one full meal a day. Losing weight like that usually isn’t…

Making a Difference in the Upcoming Elections

When I write this column every week, I try to only share the things that can, and will, affect my family’s battle with Huntington’s disease. Today, I would like to write about something that affects people with every disease and the families who care for them: voting.

It’s Not About You … It’s About Me

I have decided to get my wife a T-shirt that reads, “It’s not you, it’s me.” I want to get it for her so she can wear it each time she visits a doctor. As if her having Huntington’s disease is not bad enough, eight months ago she started…