A Family Tradition - a Column by Carlos Briceño

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Carlos is a journalist in the Midwest, who through the grace of God has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

The Squeaky Wheel Gets the Grease

Dear people working to find a cure for Huntington’s disease (HD), I imagine you all have various reasons for seeking a cure. Near the top of your list is probably a love for science and a challenge. Or, perhaps you view HD like George Huntington, whose medical observations of people…

Good Decision-making Is an Important Trait for Caregivers

My wife, Jill, and I recently bought a new car. While this might not seem related to the Huntington’s disease community, it actually is, because it involves decision-making, a big topic for families who deal with the disease. I’m thrilled about the new car, as well as another important development…

Look! A Squirrel!

My wife, Jill, has diagnosed me with attention deficit hyperactivity disorder (ADHD). (Look! A squirrel!) For the record, she is not a doctor, though she wishes she could play one on television. All joking aside, Jill has this uncanny ability to identify people’s issues. I remember the first time…

How Huntington’s Is Like a Cyberattack

In early May, cybercriminals known as DarkSide launched a devastating ransomware attack on Colonial Pipeline, one of the United States’ largest pipeline systems for refined oil products, which transports around 100 million gallons of fuel daily between Texas and New York. This attack reminded me of Huntington’s disease.

Playing Games Is Serious for My Wife

My wife, Jill, and her phone are like Siamese twins — attached all the time. At least, that’s how it seems. Jill, who has Huntington’s disease (HD), stares into her phone for hours when we are at home, playing puzzle, tile, and problem-solving games such as Tile Master,…

Time Flies When You Want It to Slow Down

This week, my wife, Jill, bought meals from HelloFresh, a company that sells kits with the ingredients and the recipes to cook at home. Apparently, because of the pandemic, something known as “cooking fatigue” has led many people to tire of the repetitive chore of starting from scratch.

The Importance of Preserving Our Words

I recently received an email from Kelli Yoder, the communications manager at Adira Foundation, an organization whose mission is to “invest in better lives for people with neurodegenerative diseases.” She wrote that the foundation had enlisted the help of StoryCorps, a…