A Family Tradition - a Column by Carlos Briceño

My wife, Jill, recently challenged a sentiment she hears far too often: that people with Huntington’s disease should feel “grateful” it’s a slow-moving condition, unlike amyotrophic lateral sclerosis (ALS). Her reaction struck a deep chord in me and revealed an important truth about how we view devastating rare and…

As my wife, Jill, and I sat at a sidewalk cafe, we basked in the warmth of the sun — a welcome feeling after what had felt like a lifetime of gloomy winter weather. Jill’s diagnosis of Huntington’s disease is an unwelcome companion in our lives, but it’s also…

As I entered our living room recently, I was met with a scene that caught me off guard. My wife, Jill, was sitting on the couch, tears streaming down her face while watching “The Masked Singer.” This wasn’t unusual in itself; she loves the show for its music…

Last in a series. Read part one. In my last column, I wrote about mental health issues and shared some advice from Alexis Ryan, a psychiatric nurse practitioner that my wife, Jill, sees to help her cope with Huntington’s disease. In part two of the series, I inquired…

First in a series. Talking about mental health was taboo when I was younger. Thankfully, that has changed for me — especially at home. My wife, Jill, who is gene-positive for Huntington’s disease, knows that two of its symptoms, anxiety and depression, may require medication and talking to…

If I ever need a short, concise way to describe something, I consult my wife, Jill. So when a friend asked Jill to describe some of the challenges she’s faced with Huntington’s disease, she began with one of its most devastating symptoms: the gradual loss of cognitive function. Jill shared…

Two weeks before Valentine’s Day, my wife, Jill, approached me with an unexpected request: “Let’s go away for Presidents Day weekend.” When I hesitated, citing work deadlines, her expression changed. “I’m feeling bad juju about being home,” she admitted quietly, a statement that immediately concerned me given her ongoing battle…

I recently learned something valuable: Not every item we buy is made to accommodate people with disabilities. This realization came with a mix of frustration and enlightenment, sparked by something as mundane — and essential — as a computer screen. My epiphany started when my wife‘s laptop broke, the…

As we approach Rare Disease Day on Feb. 28, I find myself reflecting on the journey of my wife, Jill, with Huntington’s disease (HD) and the struggles that families affected by genetic conditions face. One issue I’m focused on is a critical gap in healthcare policy that continues to…

For Valentine’s Day each year, I write my wife, Jill, something romantic. It’s my way of expressing the depth of my love for her as she battles Huntington’s disease, an inherited neurodegenerative terminal illness. Each of the columns, which often are in the form of a play, has been…