For people with Huntington’s disease who are struggling to get a good night’s sleep, establishing good sleep hygiene — setting habits such as a regular bedtime routine and maintaining a cozy, dark sleeping space — may help. Other potential ways to improve sleep include treating those Huntington’s symptoms…
Throughout her journey with Huntington’s disease (HD), my wife, Jill, has taught me a great deal about resilience, love, and understanding. One of the most profound lessons has been her empathetic approach to conflict. Jill has a remarkable ability to step back and try to understand the other…
There’s a sore need to provide more psychological support to people living with Huntington’s disease and their families, not only around the time of testing and potential diagnosis, but throughout the different stages of the disease, according to a study released at the 2024 Huntington’s Disease Society…
The outlook for the Huntington’s disease community has never been brighter, with better care options and promising new research already in progress, the president and CEO of the Huntington’s Disease Society of America said at the organization’s 39th annual convention, taking place in Spokane, Washington. “There has never…
Porcia White and her husband, Jamie, found out together the results of her genetic testing for Huntington’s disease. (Photos courtesy of Porcia White) This is Porcia White’s story: Huntington’s disease was a part of my life from an early age. My earliest memory was sitting against the wall…
The U.S. Food and Drug Administration (FDA) has authorized new dosage strengths of Austedo XR (deutetrabenazine) extended-release tablets for managing chorea, or involuntary movements, in adults with Huntington’s disease. Teva Pharmaceuticals’ Austedo XR is an extended-release formulation of Austedo (also by Teva) that is meant to…
“Love and peace.” — Marjorie Guthrie’s signature sign-off on letters and notes Marjorie Guthrie was a dancer and teacher who started her own dance school. She also was the second wife of Woody Guthrie, an American singer-songwriter and visual artist who had Huntington’s disease (HD). I know the…
The 39th annual convention of the Huntington’s Disease Society of America (HDSA) is launching this evening for “three days of education, support and camaraderie!” The convention, which runs from May 30 to June 1, offers many opportunities for attendees to learn about Huntington’s disease and to connect…
Researchers in the U.S. have created the first brain-like organoids, or mini-brains, that incorporate a working blood-brain barrier (BBB), which is the membrane that regulates which circulating substances can reach the brain and spinal cord, and that typically challenges the entry of medications. Called a BBB assembloid, the human model…
Chrissi and Tommy Penney have been together since 2010. (Photos courtesy of Chrissi Penney) This is Chrissi Penney’s story: I’d like to share my family’s story with Huntington’s disease (HD). It’s not easy to watch your family deteriorate and your children become caregivers. My grammy (my dad’s mom)…
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