When the first cool breeze arrives amid the fading hours of daylight, I feel a pull toward home. Fall invites me to create a space that’s not only beautiful but safe, comforting, and easy to move through — a home that feels like a soft blanket at the end of…
Three months of daily treatment with Skyhawk Therapeutics’ oral candidate SKY-0515 safely and effectively reduced blood levels of Huntington’s disease-associated proteins in people with the neurodegenerative condition. That’s according to interim results from a substudy of a Phase 1 clinical trial that specifically showed a greater reduction with…
When my wife, Jill, was diagnosed with Huntington’s disease (HD), our world shifted. HD is a cruel, inherited, neurodegenerative illness that affects movement, cognition, and emotions. It’s a diagnosis that forces you to confront life’s fragility head-on. For us, it also became a wake-up call — a chance to…
Some changes arrive quietly, like leaves shifting one shade at a time until the whole tree glows with color. Friendship has been like that for me: not a single dramatic ending or beginning, but a gradual reshaping. One day, I looked back and realized the landscape of my relationships was…
Healthtech company Neuralight is teaming up with the CHDI Foundation to explore the possibility of monitoring eye movements as a method to track Huntington’s disease activity in clinical trials. The CHDI Foundation is a nonprofit biomedical research organization dedicated to advancing new therapies that can slow the…
My family has a running list of sayings I’m officially banned from using at home. Apparently, tossing out cheesy phrases multiple times a day is grounds for an intervention — at least according to my wife, Jill, and our daughter, Alexus. But for this column, I’m breaking the…
The transition from summer into fall is beautiful, with cooler breezes, golden leaves, and cozy routines. But for someone living with Huntington’s disease, the change isn’t just about swapping flip-flops for sweaters. Seasonal shifts can bring real changes in how our bodies feel, how our moods flow, and how…
Pridopidine may safely and effectively slow Huntington’s disease progression in patients who aren’t taking antidopaminergic medications, which are commonly used for psychiatric symptoms and chorea, or involuntary movements. That’s according to full results from the Phase 3 PROOF-HD clinical trial  (NCT04556656), which tested pridopidine against a…
I never thought I’d be driving to work listening to the Kelce brothers interview Taylor Swift about her upcoming “Life of a Showgirl” album on their “New Heights” podcast. At 61, my musical tastes have been pretty set for decades: Give me some Bruce Springsteen or U2, and…
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