A Pollyanna is someone who maintains an optimistic perspective, even in the face of difficult situations. As a cup-half-full kind of guy, I like being positive. However, it’s essential to find balance, especially when dealing with mental health or other significant issues. Toxic positivity can be naive…
“When it started getting bad, it was like watching her drown.” That’s how a young man named Morgan described watching his mother’s Huntington’s disease (HD) progress. His interview was part of a video created by the Huntington’s Disease Youth Organization (HDYO) about the condition’s impact on young…
The effects of Ingrezza (valbenazine) on Huntington’s disease-associated chorea grew increasingly stronger over the course of the three-month Phase 3 KINECT-HD clinical trial, according to a post-hoc analysis. A post-hoc analysis is one planned and conducted after the trial has been completed. “This post-hoc analysis of the…
Fifteen years of marriage have taught me that compromise and understanding remain at the heart of a strong relationship. These elements have become more important since Jill’s diagnosis of Huntington’s disease in 2018. As I reflect on our life since then, I realize how much we have grown individually…
Clinical trials testing either tominersen, an experimental therapy designed to target the underlying cause of Huntington’s disease, or dalzanemdor, an oral candidate that aims to improve cognitive abilities, are currently enrolling Huntington’s patients in the U.S. Updates on the therapies’ clinical programs were provided by representatives of their…
The Huntington’s disease community was encouraged to step up and get involved in observational studies to help scientists better understand the neurodegenerative disorder and accelerate the development of potential treatments. Participating in research “is the greatest thing that we can do to help expedite treatments for HD [Huntington’s disease],”…
In my early 20s, I went to see my general practitioner because I’d been noticing my dad having symptoms of what I thought could be Huntington’s disease. In hindsight, he’d been displaying cognitive signs for a decade, but now the physical signs had started to show. The doctor…
Establishing exercise routines and getting support from care partners can help people with Huntington’s disease stay active and maintain their mobility and function. In the past decade, new research on the effects of exercise has shown conclusively that aerobic exercise can help patients improve their fitness and motor…
Psychotherapy — talk therapy with a professional to help a person manage their emotional state and mental health — can be of benefit to people with Huntington’s disease, though finding the right therapist can require some “shopping around.” That’s according to Spencer Diehl, a licensed clinical social worker/therapist at…
The U.S. Food and Drug Administration (FDA) has granted regenerative medicine advanced therapy (RMAT) status to AMT-130, an experimental gene therapy for Huntington’s disease, the first time a Huntington’s treatment candidate has received such a designation. The RMAT designation is given to therapies that seek to treat, modify,…
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