Anxiety is a frequent companion for many of us living with Huntington’s disease (HD). Whether it’s the overwhelming stress of managing symptoms, navigating social interactions, or even planning for the future, anxiety can creep in and overshadow our daily lives. Over the years, I’ve developed strategies to manage…
Beta-blockers, a class of medicines often used to manage heart and blood pressure issues, may slow the onset and progression of Huntington’s disease, according to data from Enroll-HD, the world’s largest observational study in Huntington’s. “Given that there are no disease-modifying agents for HD [Huntington’s disease], the possibility that…
My wife, Jill, has Huntington’s disease — a rare, neurodegenerative illness that can seem to rule her life. One of the hardest things to deal with is Jill’s nearly constant worrying about going places. It’s difficult to…
Music has always been more than just sound to me. It’s a lifeline. Living with Huntington’s disease (HD), I’ve faced physical challenges, emotional hurdles, and moments of deep introspection. During the most difficult times, music has been my refuge, helping me manage my mood, find peace, and lift my…
Sarepta Therapeutics has entered a global licensing and collaboration agreement with Arrowhead Pharmaceuticals covering Arrowhead’s therapy candidates, including ARO-HTT, an experimental treatment for Huntington’s disease. Sarepta will obtain exclusive global rights to ARO-HTT and other preclinical programs, as well as clinical and discovery-stage programs for rare genetic…
The weight of my family’s history often feels like a shadow I can’t outrun. My mother battled bipolar disorder while my father fought his demons with alcohol. I lost both of my sisters far too young, and now my beloved wife, Jill, and our daughter, Alexus,…
Living with Huntington’s disease (HD) presents rare challenges, including managing symptoms that can affect physical, mental, and emotional well-being. One of the often overlooked aspects of maintaining health with HD is cultivating good sleep hygiene. When sleep is interrupted or inadequate, the ripple effects on our bodies and minds…
Sage Therapeutics is discontinuing the development of dalzanemdor after the investigational therapy failed to improve cognitive abilities relative to a placebo among people with Huntington’s disease enrolled in a Phase 2 clinical trial. Statistically significant gains in cognition with treatment was the main goal of the…
After my wife, Jill, was diagnosed with Huntington’s disease (HD) in 2018, we gained a new level of appreciation for people affected by terrible storms and other natural disasters. The rare disease she inherited made us realize, in deeper ways, that what she’s experiencing as her neurodegenerative illness progresses…
In 2012, my life took an unexpected turn when I was diagnosed with Huntington’s disease (HD). The road to that diagnosis had been long and filled with confusion, but the moment I received an answer, my future felt uncertain. As part of my treatment plan,…
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