The power of kind words in the lives of caregivers
Appreciation in a Mason jar, and other ways to offer helpers a welcome boost
The other day, I overheard something beautiful that made me pause and reflect. My wife, Jill, who is gene-positive for Huntington’s disease, was on the phone, comforting a friend struggling with caregiving responsibilities.
“You’re doing an amazing job,” Jill told our friend. “Remember, even on the toughest days, your love and care make a world of difference. You’re stronger than you know, and your efforts are truly appreciated, even if it doesn’t always feel like it.”
As I listened, I fought the urge to cry because I realized Jill’s words to our friend were words I needed to hear, too. I know Jill appreciates me and loves me as much as I do her, but in the chaos of our daily lives, it’s easy to forget that Huntington’s affects both of us.
Later that evening, when we sat down to watch TV, Jill turned to me and said. “Carlos, I realized something today. Lately, I’ve been so focused on my own journey that I haven’t acknowledged yours enough. You deserve to hear those words, too.”
I felt the urge to cry again.
“You’re an incredible husband and caregiver,” she said. “Your patience, love, encouragement, and support mean everything to me. I know it’s not easy, but you make every day brighter, even when you use puns.”
The importance of appreciation
Despite her gentle dig about my status as the household “pundit,” her words reminded me of the power of kind words in our relationship. It’s not just the big gestures that have the biggest impact; sometimes simply sharing several sentences from your heart can inspire another person’s heart to grow and glow with love.
Jill said that she knows Huntington’s may one day take away her ability to give me that verbal pat on the back, or even understand that I need it, so she declared she’s going write all the things she loves and appreciates about me and put them in a Mason jar. That way, I can grab a note whenever I need to hear something positive.
Jill and I both decided that we wanted to share that same sentiment with all of you caregivers.
Please know that your role is invaluable, and your efforts don’t go unnoticed. Even on days when you feel inadequate or overwhelmed, know that you’re making a profound difference in someone’s life.
And to those living with Huntington’s or any rare disease: Your journey is challenging, but don’t forget that your loved ones are on this path with you. A few kind words can go a long way in lifting their spirits and renewing and reinforcing the bond you share.
Jill’s moment of realization reminded us both that, no matter how much this disease has a devastatingly relentless way of disrupting a couple’s normal way of life, we’re in this together, supporting each other through the ups and downs. And sometimes, all it takes is a few heartfelt words to remind us of the love and strength we share.
Note: Huntington’s Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Huntington’s Disease News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to Huntington’s disease.
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