I saw a pig fly the other day. OK, that’s a lie. But it sure felt like one did because my wife, Jill, cried. It’s rare for her to cry. Crying makes her feel worse than whatever made her cry in the first place, so she tries to avoid it.
Columns
Last weekend, my boyfriend and I finally exchanged our Christmas presents. This exchange consisted of us renting a car and driving over nine hours through a winter storm to get to an Airbnb outside of Toronto.
During the holidays, the small, wood-paneled dining room was full to bursting with my family members. Ten or more people squeezed around a table meant for six, with just an inch of elbowroom between us. My dad sat at the head of the table, which was covered by a cream…
In this week’s column, I’d like to share a few details about a typical day for my wife, Jill. When the alarm sounds at 5:20 a.m., she wakes up and gets ready to go to work as a secretary in a small private school. Jill starts her workday by helping…
The Centers for Disease Control and Prevention (CDC) recommends that children get their first dose of the measles, mumps, and rubella (MMR) vaccine between 12 and 15 months. Of course, some children can’t receive it due to immune system problems or severe allergies,…
Caregiving Is a Marathon
My mother-in-law, Edwina, visited us right before Christmas. I’m proud to say that I’m her favorite son-in-law. (That’s a family joke. I’m her only son-in-law.) Her husband, Ken, died from Huntington’s disease in 2011. During her visit, I asked her what it’s like to be a caregiver for someone you…
“It could be worse” is a sentiment I hear fairly often. It’s often said after I express sympathy for someone’s situation — such as when someone worked until 10 p.m. instead of leaving at 6. It’s as if the sympathy is unwarranted because it wasn’t the absolute worst…
Patience doesn’t just happen. It takes work. Would you enter a weightlifting competition, run a marathon, or perform stand-up comedy without planning and practicing? You probably wouldn’t. So why do we expect ourselves just to be patient? When my wife, Jill, learned that she carries the Huntington’s gene, we started…
Every family, regardless of religion or background, has at least one time of year that is special to them. A time when they get together and celebrate, repeating rituals that have been passed down through the generations. For my family, that time is…
I was an emotional mess when I first met Jeff Carroll at a Huntington’s disease conference. My recent gene-positive diagnosis was on my mind. I couldn’t talk about it without crying, and I believed that I would never be happy again. My husband and I were…
Recent Posts
- First US patients dosed in trial of experimental Huntington’s treatment
- I hope someone will notice when my gene-positive wife needs help
- I shouldn’t have to fall apart for people to believe the seriousness of my HD
- FDA grants priority review to gene therapy for Huntington’s
- Investing in education is key to improving future healthcare