Alexus writes about her experience with Huntington’s disease. Alexus is all too familiar with the disease: her grandfather and mother have it, and she recently learned she does, too. Alexus graduated from MIT with a bachelor’s in mechanical engineering and minors in health policy and management. Currently, she’s working in life science consulting in the Boston area.
About a week ago, my boyfriend and I treated ourselves to Qdoba for lunch. I am in love with their food, as most people in my life know, especially their queso and chips. They serve way more chips than anyone could…
I have been working from home since March and likely will continue to do so until next summer. Persephone, my first cat, has loved this. She’s always been pretty needy, mostly because of her extreme fear of missing out. Anytime my boyfriend or I shut the…
I spent about two months weighing the pros and cons of getting bangs again. On one hand, bangs work well with the shape of my face and eyes. On the other, I’d have to wash them every morning. They’re are a lot of work, and getting them is a commitment…
During college, I always joked with my friends that I would drop out of school to open a bar in Canada (I prefer their healthcare system). MIT was very stressful, and my reaction to unenjoyable situations is to want to escape. Based on…
My grandmother and my mom taught me how to cook. Growing up, I would make apple pies with my grandmother for the holidays, and I learned fractions by doing recipes with my mother. It amazes me how much of our lives is centered around what essentially is our…
To this day, I have only talked to two younger people with Huntington’s who weren’t related to me. I know some resources could help me connect to others (like the HD Young Adult Conference), but I haven’t decided if I want to…
Working remotely, while slightly draining, has had its benefits. Being able to sleep in until the last possible second (and maybe sometimes slightly past that) and my ability to work anywhere are among them. That latter perk means I’ve been able to work from my parents’…
All of my friends know about my love of wine. The first summer after I turned 21 I was in Maine, and I spent many weekends traveling down to New Hampshire to tour vineyards. I especially love uncorking a strange wine, like PB&J or Choco-Straw…
This past Monday night, my boyfriend and I cooked an amazing meatball dish with garlic bread on the side. (No, I will not disclose whether I used premade meatballs and garlic bread.) We paired the dishes with a bottle of sangria we’d bought for taco night this past…
Thursday, Oct. 17, 2019, started off like most weekdays for me. Working in consulting, there are always ebbs and flows. Some days I’m extremely busy, other times I’m not. That day was one of the latter. I was having lunch with a co-worker when he…
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