A musical reminds my wife of the apathy caused by her HD
How could a musical lead to tears and a conversation about my wife’s Huntington’s disease (HD)? That was my thought as Jill and I recently walked out of the National Theatre in…
A Family Tradition
— Carlos Briceño
Carlos Briceño is a journalist and director of communications who, through the grace of God, has been blessed with a brilliant, beautiful, and courageous wife and daughter. He currently lives in Maryland, about a half hour away from Washington, D.C., with his wife, Jill. In 2018, Jill found out she was gene-positive for Huntington’s disease at the age of 41, while his daughter found out she was gene-positive for HD in 2019 when she was 22. Jill and Carlos write about their day-to-day struggles and triumphs to share their knowledge and to let others know they are not alone. Carlos loves to evangelize, read, play soccer, and pepper his conversations with — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)
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What to expect from this year’s HDSA convention
Social worker Jessica Marsolek is the associate director of community services for the Huntington’s Disease Society of America (HDSA). My wife, Jill, who is gene-positive for Huntington’s disease (HD), and I…
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