As I mentioned in my debut column of “Negative to Positives” a couple weeks ago, I have a genuine passion for helping those undergoing genetic testing for Huntington’s disease, which is an incredibly challenging life hurdle. Many members of this community watch their parents slowly and progressively decline, and…
Negative to Positives – a Column by B.J. Viau
Like many of you reading, I am from a Huntington’s disease (HD) family. I learned at the young age of 9 that my mom would progressively, slowly lose her ability to do absolutely everything. Around that same time, I also learned I had a 50% chance of inheriting that same…
Recent Posts
- First Huntington’s patient dosed in large trial of oral therapy votoplam
- When sensory issues and Huntington’s behavioral changes collide
- In raising HD awareness, we must be mindful of the stories we tell
- Huntington’s awareness month shines light on personal stories
- Living in the present, even when Huntington’s reminds us of the future