B.J. has played a role in the Huntington’s disease (HD) community since his mom’s diagnosis in 1995. He and his family hosts an annual Hoop-A-Thon fundraiser that’s helped to raise over $1 million for the HD Society of America. BJ co-founded the HD Youth Organization, an international non-profit helping young people impacted by HD. He’s served as its board chairman for over 10 years. Professionally BJ has been working in the pharmaceutical industry for the past 10 years in various positions. He tested negative for HD, but remains committed to supporting the community and hopes this column will bring positive energy into many people’s lives.
Editor’s note: This column briefly mentions the topic of suicide. Please find resources for help at the end of the column. Unlike many rare genetic disorders, Huntington’s disease doesn’t ... Read more
I’ve always tried to stay alert to the needs of the Huntington’s disease community by listening during support groups, learning at conferences and conventions, and following along with the ... Read more