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7 self-care tips I live by with Huntington’s disease

Living with Huntington’s disease (HD) can feel like an uphill battle, but self-care can make a meaningful difference in managing its symptoms. The key to a successful self-care routine lies in personalizing it to fit your unique needs and lifestyle. These seven tips have helped me manage my…

Setting healthy boundaries is crucial in life with Huntington’s disease

Living with Huntington’s disease (HD) means navigating a world of unpredictability — fluctuating symptoms, physical limitations, emotional challenges, and the stigma that often comes with a chronic illness. Setting healthy boundaries has been crucial to managing my energy, maintaining relationships, and living my best life despite the hurdles. Following…

7 ways I practice self-compassion while living with HD

Living with Huntington’s disease (HD) is a journey filled with ups and downs, uncertainties, and moments that test our mental, emotional, and physical strength. Over the years, I’ve realized that practicing self-compassion isn’t just beneficial — it’s necessary. When the world feels heavy, or when my symptoms remind…

Sometimes absurd things can bring us solace in life with HD

Sometimes our best-laid plans go sideways, and what emerges is better than anything we could’ve orchestrated. That’s what I learned the year my wife, Jill, was diagnosed with Huntington’s disease (HD). When your world gets turned upside down, you grasp for anchors — those memories of better times that…

5 ways I practice mindfulness while living with Huntington’s

Living with Huntington’s disease (HD) brings unique challenges — physical, emotional, and mental. Navigating its complexities while maintaining a sense of peace and presence in my daily life hasn’t always been easy, but mindfulness has become an essential tool in my toolbox. Following are five ways I practice mindfulness…

5 ways I manage anxiety as someone with Huntington’s disease

Anxiety is a frequent companion for many of us living with Huntington’s disease (HD). Whether it’s the overwhelming stress of managing symptoms, navigating social interactions, or even planning for the future, anxiety can creep in and overshadow our daily lives. Over the years, I’ve developed strategies to manage…

The power of music in helping me manage my mood with HD

Music has always been more than just sound to me. It’s a lifeline. Living with Huntington’s disease (HD), I’ve faced physical challenges, emotional hurdles, and moments of deep introspection. During the most difficult times, music has been my refuge, helping me manage my mood, find peace, and lift my…