Columns

I mentioned the day that I received the results of my genetic test in my first column. It was a Friday. I had been told to make plans for that day, because not knowing what you’re going to do can contribute to stress. However, I didn’t arrange…

Bear with me as I make an analogy. It’ll make sense in a moment. My wife, Jill, now sees genetic testing as the equivalent of a GPS. When you need to find out what illnesses run in your family, all you have to do is turn it on. Once…

As you may have read in a previous column, I decided to get tested for Huntington’s at 22 years old. For me, it was a no-brainer. I wanted to get tested because I can’t handle unknowns. They vex me. I have obsessive-compulsive disorder, so…

We can all agree that healthcare is not perfect. Even with insurance coverage, a trip to the doctor can be expensive. Travel to and from appointments can be time-consuming and costly, especially for someone with a disability. My wife, Jill, was diagnosed with the Huntington’s gene, just like her father,…

“How are you?” is one of the most common greetings I hear. It is ingrained in the culture and is distinctly American. Unless the person is a close friend, the anticipated answer is “good” or “fine.” If you are feeling terrible, “a little sick”…

I was alone in my flower shop, surrounded by a rainbow of fresh flowers and bright orange walls. The warm summer sun filtered through the floor-to-ceiling window. Despite the beauty of my surroundings, my mind was at the bottom of a deep, black pit, and I was struggling to get…

Zombies, spiders, losing your job. What is your greatest fear? Mine used to be drowning, but not anymore. My biggest fear now is losing the woman I love and adore to Huntington’s disease (HD). Over the last year, our family has had its ups and downs. The gene-positive diagnosis of…

My mother is right about pretty much everything, so much so that I sometimes think that she can see into the future. So, whenever she is wrong, I feel the urge to take out my phone and record her admitting her mistake. Those occasions are…

Have you ever been on a plane with a couple and their small child? You hope the child falls asleep or, at the very least, behaves. At some point during the flight, it’s not uncommon for children to whine and fidget, cry and hit the seat, or insist on getting…

Today, I was opening a straw for my drink the way I always do: I rip off a small section toward one end, then remove the longer end of the wrapper. While holding the shortened wrapper, I insert the bare end of the straw into the cup…