Author Archives: Erin Paterson

My Genetic Status Complicated Having a Baby

As I walked down the street to get my afternoon coffee one day, it appeared as if everything was normal. Unfortunately, everything was not. I crossed the same streets I normally do, walked past familiar neighborhood shops, and waved to fellow business owners. I ordered my usual coffee and said…

Saying ‘Yes, Yes!’ to the Power of Words

I wasn’t expecting to be brought to tears when I heard motivational speaker Lisa Nichols address a crowd at the Archangel Summit in Toronto last year. Nichols strode onto the catwalk-style stage wearing a long, embroidered dress, her braided hair cascading down her back. A…

I’ve Lost Many Things Because of Huntington’s

During the holidays, the small, wood-paneled dining room was full to bursting with my family members. Ten or more people squeezed around a table meant for six, with just an inch of elbowroom between us. My dad sat at the head of the table, which was covered by a cream…

Having a Role Model Helped Me to Heal

I was an emotional mess when I first met Jeff Carroll at a Huntington’s disease conference. My recent gene-positive diagnosis was on my mind. I couldn’t talk about it without crying, and I believed that I would never be happy again. My husband and I were…

Thank You, Michael J. Fox

My husband and I were standing in a line of hundreds of people waiting to meet Michael J. Fox, one of the stars of the “Back to the Future” trilogy of movies. All around us were adults dressed up as their favorite comic and movie characters. We had…