Posts by: Alexus Jones

Alexus Jones

Alexus is a columnist at BioNews — the publisher of this site — where she writes about her. experience with Huntington’s disease. Alexus is all too familiar with the disease: her grandfather and mother have it, and she recently learned she does, too. Alexus graduated from MIT with a bachelor’s in mechanical engineering and minors in health policy and management. Currently, she’s working in life science consulting in the Boston area.

March 19, 2021March 17, 2021

I Keep Moving by Storing Little Boxes in My Head

Always Looking Forward – a Column by Alexus Jones, Columns

I like to keep things organized. Everything should have a place, even if it’s on the floor next to my bed, like my clothes. Even my problems have a place: ... Read more

October 23, 2020October 21, 2020

Should I Get a Huntington’s Tattoo?

Always Looking Forward – a Column by Alexus Jones, Columns

When I was a sophomore in college, I debated going blond. It was January, and every winter, I usually cut or dye my hair. I always need a change of ... Read more

October 2, 2020September 30, 2020

‘The Good Place’ Reminds Me of the Importance of a Moment

Always Looking Forward – a Column by Alexus Jones, Columns

On Saturday, the last season of the Netflix series “The Good Place” began streaming. To me, it was the best ending of any TV show I have ever seen. My ... Read more

September 18, 2020September 16, 2020

Finding a Therapist to Talk to About Huntington’s Can Be Hard

Always Looking Forward – a Column by Alexus Jones, Columns

This week, I have my first therapy appointment in a while. I hope therapy will give me a structured place to talk about Huntington’s with someone not impacted by it. ... Read more

September 4, 2020September 2, 2020

An Ant Invasion Reminds Me How Important Having My Rock Is

Always Looking Forward – a Column by Alexus Jones, Columns

About a week ago, my boyfriend and I treated ourselves to Qdoba for lunch. I am in love with their food, as most people in my life know, especially their ... Read more

August 21, 2020August 19, 2020

Striving to Be as Carefree as a Kitten

Always Looking Forward – a Column by Alexus Jones, Columns

I have been working from home since March and likely will continue to do so until next summer. Persephone, my first cat, has loved this. She’s always been pretty needy, ... Read more

August 7, 2020August 5, 2020

I’ve Learned to Focus on Living in the Moment

Always Looking Forward – a Column by Alexus Jones, Columns

I spent about two months weighing the pros and cons of getting bangs again. On one hand, bangs work well with the shape of my face and eyes. On the ... Read more

July 17, 2020July 15, 2020

My Support Network Keeps Me Sane

Always Looking Forward – a Column by Alexus Jones, Columns

During college, I always joked with my friends that I would drop out of school to open a bar in Canada (I prefer their healthcare system). MIT was very stressful, ... Read more

June 19, 2020June 17, 2020

Cooking Reminds Me of Cherished Time with My Mother

Always Looking Forward – a Column by Alexus Jones, Columns

My grandmother and my mom taught me how to cook. Growing up, I would make apple pies with my grandmother for the holidays, and I learned fractions by doing recipes ... Read more

June 12, 2020June 10, 2020

To Join or Not to Join, That Is the Question

Always Looking Forward – a Column by Alexus Jones, Columns

To this day, I have only talked to two younger people with Huntington’s who weren’t related to me. I know some resources could help me connect to others (like the ... Read more