Posts by: Alexus Jones

Alexus Jones

December 6, 2019December 4, 2019

Sometimes Distracting Yourself Is a Form of Self-care

Always Looking Forward – a Column by Alexus Jones, Columns

Over this past holiday, my wonderful parents got me the Nintendo Switch and the new Pokemon game (specifically Shield, because it had cooler Pokemon). Yes, I am aware this ... Read more

November 22, 2019November 21, 2019

A Family Tragedy Caused Me to Reevaluate My Huntington’s Status

Always Looking Forward – a Column by Alexus Jones, Columns

At around 1 a.m. on Nov. 1, 2019, my aunt was pronounced dead. She had been waiting with her son in their car outside their house for a storm ... Read more

November 15, 2019November 13, 2019

I Can’t Help Feeling Guilty About Living Far from My Mom

Always Looking Forward – a Column by Alexus Jones, Columns

While traveling to a recent event on the T, greater Boston’s public transport system, I felt as if I were in a generic movie about a city-dwelling 20-something. I ... Read more

November 1, 2019October 29, 2019

I Want to Freeze Time to Live Forever in the Precious Moments

Always Looking Forward – a Column by Alexus Jones, Columns

Some moments are so perfect that you wish time would stop so that some part of you could live in that moment forever. These moments can be significant milestones, ... Read more

October 25, 2019October 23, 2019

My Dating Experience as a Huntington’s Gene Carrier

Always Looking Forward – a Column by Alexus Jones, Columns

I was recently invited to talk about my column on Help 4 HD Live!, a weekly podcast for the Huntington’s disease community. The host, Lauren Holder, asked me how ... Read more

October 18, 2019October 17, 2019

How Climate Change Matters in the Search for a Huntington’s Cure

Always Looking Forward – a Column by Alexus Jones, Columns

In a previous column, I wrote about how I believe it is likely for a medical breakthrough to happen by the time I am old enough to have symptoms. ... Read more

October 11, 2019October 9, 2019

Addressing the Anguish that Comes with Diagnosis

Always Looking Forward – a Column by Alexus Jones, Columns

As I’ve mentioned in previous columns, my mother received her Huntington’s diagnosis almost a year ago. My parents waited to tell me until I arrived home for winter break from ... Read more

October 4, 2019October 2, 2019

The Cognitive Dissonance of Having a Parent with Huntington’s

Always Looking Forward – a Column by Alexus Jones, Columns

I’m a logical person. I tend to look at the numbers and make a rational assessment of a situation. But I also want to be happily surprised rather than ... Read more

September 27, 2019September 26, 2019

Writing My Thoughts About Huntington’s Disease Is Cathartic

Always Looking Forward – a Column by Alexus Jones, Columns

I am amazed at the differences in the ways our brains work and the variations that exist in our thought processes. My roommate and I were discussing this subject, ... Read more

September 20, 2019September 18, 2019

Why I Dislike Being Called ‘Strong’

Always Looking Forward – a Column by Alexus Jones, Columns

In my previous column, I talked about the day I received my diagnosis. I got through the following weeks by telling myself that nothing in my life had changed, ... Read more