Posts by: Alexus Jones

Alexus Jones

June 12, 2020June 10, 2020

To Join or Not to Join, That Is the Question

Always Looking Forward – a Column by Alexus Jones, Columns

To this day, I have only talked to two younger people with Huntington’s who weren’t related to me. I know some resources could help me connect to others (like ... Read more

May 22, 2020May 20, 2020

Pulled Between Two Lives

Always Looking Forward – a Column by Alexus Jones, Columns

Working remotely, while slightly draining, has had its benefits. Being able to sleep in until the last possible second (and maybe sometimes slightly past that) and my ability to ... Read more

May 8, 2020May 7, 2020

Practicing Self-care and Letting Go of the Guilt

Always Looking Forward – a Column by Alexus Jones, Columns

All of my friends know about my love of wine. The first summer after I turned 21 I was in Maine, and I spent many weekends traveling down to ... Read more

April 17, 2020April 15, 2020

New Perspectives from a Trip to the ER

Always Looking Forward – a Column by Alexus Jones, Columns

This past Monday night, my boyfriend and I cooked an amazing meatball dish with garlic bread on the side. (No, I will not disclose whether I used premade meatballs ... Read more

April 3, 2020April 2, 2020

A 10-minute Walk, and a Purr That Changed My Life

Always Looking Forward – a Column by Alexus Jones, Columns

Thursday, Oct. 17, 2019, started off like most weekdays for me. Working in consulting, there are always ebbs and flows. Some days I’m extremely busy, other times I’m not. ... Read more

March 6, 2020March 4, 2020

Some Days, I Drown in a Downpour of Emotions

Always Looking Forward – a Column by Alexus Jones, Columns

One summer when I was in middle school, my parents and I went to Florida to visit family. On a gorgeous day (well, as much as wet heat can ... Read more

February 21, 2020February 20, 2020

Huntington’s Is Not My Secret

Always Looking Forward – a Column by Alexus Jones, Columns

A few months ago, my boyfriend’s Philosophy of Technology class planned a debate about the ethics of gene editing. I told him that I was a perfect case study ... Read more

February 7, 2020February 6, 2020

I Want to Be Hopeful About New Research but I’m Still Wishing for a Cure

Always Looking Forward – a Column by Alexus Jones, Columns

This week, I read two articles that were sent to me describing scientific breakthroughs regarding possible treatments for Huntington’s. The first described a case study recently published in the journal ... Read more

January 31, 2020January 30, 2020

What Family Means to Me

Always Looking Forward – a Column by Alexus Jones, Columns

Growing up, my grandparents and I drove every summer from Florida to Pennsylvania to visit our extended family. I spent time with their siblings, nieces, and nephews who still ... Read more

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