Huntington’s Has Strengthened My Relationship With My Mom

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by Alexus Jones |

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Having a parent with Huntington’s disease influences my life in many ways, most of which I’m likely unaware of. It influences everything from my plans for the future to how I view the world.

My mom raised me to be independent (like that Destiny’s Child song). She would always tell me I shouldn’t feel pressured to visit them, and I should live my life in a way that makes me happy. Still, I can’t help but consider her in every big life decision I make.

One recent example of that influence was when the company I work for opened up an office in London. If my mom didn’t have Huntington’s, there is a chance I would have considered transferring there for a few years. But she does have Huntington’s, so I didn’t move to London.

I’ve written previously about how guilty I feel living so far away now, and I’m only a three-hour flight from her. If I were living an entire ocean away, I would feel 10 times worse.

I want to stress that my mom would encourage me to move to London if that was what I wanted. But I know myself well enough to understand that I wouldn’t be able to handle the distance or the guilt. Knowing that the time I have with my mom is limited makes every day with her more meaningful.

While some people my age might go on vacation and do recreational activities like skiing, I am taking off work next week to spend time at home. Luckily for me, my mom is amazing, so spending time with her is not a big ask.

I am excited to have a week off just to spend time with her. Normally, when I am home, we spend our time rewatching old TV series (such as “Pretty Little Liars and “Charmed) and talking. We are a lot alike in many ways, but we have different takes on the world, which leads to interesting discussions. 

More than once I have wanted to move back to the Chicago area where she lives to be closer to her.  From my dad’s writing, I know they miss me as much as I miss them. However, I wouldn’t be happy there, and my mom would feel horrible if I did it just for her. Instead, I looked for homes in the Boston area that are big enough for her and my dad to stay with me when they visit.

I don’t know if my need to be close to her is due to Huntington’s disease or if it’s simply that I’m an only child. I don’t think I’ll ever know for sure, but it’s definitely a good question to ask my therapist.


Note: Huntington’s Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Huntington’s Disease News or its parent company, BioNews, and are intended to spark discussion about issues pertaining to Huntington’s disease.


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