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Waving Goodbye to Toxic Relationships

For more than two years, I have shared my family’s journey with Huntington’s, including learning about the disease, living through my wife and daughter testing gene-positive, and working to accept their diagnoses. This time, I want to share some advice from Jill, my wife: Let go of people who are…

‘Punting’ for a Cure for Huntington’s

My wife, Jill, and I celebrated our wedding anniversary last month. We like to joke that we don’t keep track of the years because it seems like yesterday when we got married. Some years, as a gift, I like to write her something romantic or funny. This year, I decided…

A Road Trip I Would Only Take for My Mom

I’ve found that having a parent with Huntington’s disease makes you value every moment with them, even in unfortunate situations. For instance, normally I wouldn’t volunteer to go on a road trip from Massachusetts to Illinois, but I would for my mother. As I’ve previously written, my mom was…

Why I Choose to Be Like Water

“Parting is such sweet sorrow,” Shakespeare once wrote. And don’t I know it. Recently, the big news in my home is we’re moving to the East Coast, as my wife, Jill, and I want to move closer to our daughter, who lives in Boston, and other family…

The Squeaky Wheel Gets the Grease

Dear people working to find a cure for Huntington’s disease (HD), I imagine you all have various reasons for seeking a cure. Near the top of your list is probably a love for science and a challenge. Or, perhaps you view HD like George Huntington, whose medical observations of people…

Good Decision-making Is an Important Trait for Caregivers

My wife, Jill, and I recently bought a new car. While this might not seem related to the Huntington’s disease community, it actually is, because it involves decision-making, a big topic for families who deal with the disease. I’m thrilled about the new car, as well as another important development…

EveryLife Introduces First of Kind ‘Roadmap’ to ICD Codes

To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes — are assigned, updated, and revised in the U.S. health information system, the EveryLife Foundation for Rare Diseases is presenting a first-of-its-kind resource guide. The foundation created the…