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I’ve recently seen some posts in Facebook groups and Reddit threads about the emotional toll of testing negative for Huntington’s disease (HD). Some share that they no longer feel a part of the HD community. Others say they’re exhausted after running so fast and for so long from this…

Caregivers of people with Huntington’s disease want support programs that will help them in balancing their own care needs over time with those of the patient, often a family member. This theme emerged from caregiver focus groups conducted in the Netherlands, where support was considered effective if it would…

My wife, Jill, is lucky to come from a loving family. Her relatives are the kind of people who would help anyone in any way they can. I’ve been blessed to be welcomed by them. After Jill was diagnosed with Huntington’s disease (HD) in 2018, our daughter, Alexus…

With early data on AMT-130 for Huntington’s disease reportedly looking promising, uniQure said it’s planning to meet early next year with regulatory authorities to discuss the late-stage development of its gene therapy candidate. By that time, more data on the ongoing Phase 1/2 clinical trials testing the therapy…

My wife, Jill, and I recently celebrated 15 years of marriage. When we said “I do” all those years ago, I couldn’t have guessed what would eventually happen to her: She is being robbed of her words. Or, as she puts it, words are “escaping” her. Jill will be…

My wife, Jill, has always been stubborn, to put it lightly. She won’t admit that something is too hard for her. Ever. “No, I got it” is her favorite saying. But since she was diagnosed with Huntington’s disease in 2018, I haven’t been sure if stubbornness is…

The other day, a lightbulb went off when I thought about the things that Huntington’s disease might rob from me. I’m married to someone who was diagnosed with Huntington’s in 2018, and I often focus on what the disease will steal from her (or us). But I hadn’t…

When young, healthy progenitors of neuron-supporting cells called glia are transplanted into the adult brain, they can grow and replace diseased glial cells, including those carrying a Huntington’s disease-causing mutation, a study in mice reports. “These findings have strong therapeutic implications, as they suggest that in the adult human…

What do you say — in under a minute! — to someone about a rare disease? How do you convey the needs of people with Huntington’s disease (HD), knowing how terrible it is because you’ve spent years watching what it does to people you love? How can you explain…

Huntington’s disease could develop at earlier ages in people using calcium channel blockers to control hypertension, a study that looked into genes encoding targets of blood pressure-lowering medications reported. Findings may have important implications for managing high blood pressure in people at risk of Huntington’s, identified before disease…