Carlos Briceño,  —

Carlos is a journalist and director of communications who, through the grace of God, has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

Articles by Carlos Briceño

Hugging Is One of the Things I Miss the Most

The first time I met my wife, Jill, she told me she wasn’t comfortable with “PDA.” Being a smart aleck, I asked her why she didn’t like personal digital assistants. (The old PalmPilots were known as PDAs.) She flashed the patient smile of someone who knew it would require…

Forced Family Time

My wife, Jill, and I live in Illinois, where the governor has declared a stay-at-home order for our entire state. It’s been weeks now. He also suggests canceling summer events and has decided that children will not return to school for the remainder of the academic year. We are…

The Realities of Rare Diseases

Social distancing seems to be the trend these days. Several reality shows illustrate what I mean: participants practice social distancing and isolation to such an extent that everyone communicates to each other behind walls (in “Love Is Blind“) and computer screens (in “The Circle“). Now, though, this is…

We Are Two People with One Heart

My home has been super quiet for the past several days, a silence that will continue for several more as my wife, Jill, visits our daughter on the East Coast. Jill was supposed to be gone for only four days from Wednesday to Sunday, but her trip was extended when…

Believing in the Impossible

When she was little, my daughter, Alexus, visited a 7-Eleven store with my wife, Jill. To reward Alexus’s wonderful report card, Jill said she could choose any treat. Our daughter said she wanted one of those scratch-off lottery tickets. Jill patiently tried to explain that no one ever really…

I Always Want to Keep My Loved Ones Safe

Recently, our daughter, Alexus, came home for a weekend visit. It was wonderful, and the weather was perfect. We ate delicious food and had one big ball of fun. We are lucky to live in an area with many things to do. The weather has been so gray lately, but…