Last week, I was listening to GC Chat, a genetic counseling podcast, and it got me thinking about the…
B.J. Viau
B.J. Viau (View) has been a Huntington’s disease (HD) advocate since his mom’s diagnosis in 1995. B.J. co-founded the HD Youth Organization (HDYO) and most recently in 2022 he launched HD Genetics, which offers a new option for individuals to undergo genetic testing for HD. Professionally BJ has been working in the pharmaceutical industry for the past 10 years in various positions. He lives in Charlotte, North Carolina, with his wife and two kids. He hopes this column sparks new ideas and challenges people's thinking to help the HD and rare disease community.
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Articles by B.J. Viau
In many previous columns, I’ve shared the statistic that only about 10% of those at risk for Huntington’s…
I traveled last month to the University of Wisconsin-Madison to participate in an observational research study called PREVENT-HD. I’ve…
It’s somehow already Thanksgiving week here in the U.S. Where did the year go? This is the perfect time to…
I never knew what participating in medical research was all about when I was growing up. For 10 years, I…
As a Huntington’s disease (HD) community advocate, I am always trying to listen and learn from anyone who may…
I’ve worn many hats as a Huntington’s disease (HD) community advocate over the past 25 years, after my mom was…
Where do you go to find support and information about Huntington’s disease (HD) when you need it most? This question…
Getting a new treatment to people with rare conditions like Huntington’s disease is difficult. It takes lots of intelligence about…
I’ve been a part of the Huntington’s disease (HD) community since my mom was diagnosed in 1995. I was 9…