B.J. Viau,  —

B.J. Viau (View) has been a Huntington’s disease (HD) advocate since his mom’s diagnosis in 1995. B.J. co-founded the HD Youth Organization (HDYO) and most recently in 2022 he launched HD Genetics, which offers a new option for individuals to undergo genetic testing for HD. Professionally BJ has been working in the pharmaceutical industry for the past 10 years in various positions. He lives in Charlotte, North Carolina, with his wife and two kids. He hopes this column sparks new ideas and challenges people's thinking to help the HD and rare disease community.

Articles by B.J. Viau

FDA Patient Listening Session Set for Huntington’s Disease

When I stepped away from my role as board chair of the Huntington’s Disease Youth Organization in 2020, I knew it wouldn’t be long before I found my next Huntington’s passion project. The passion in me is deeply rooted and originally created through my mom, who passed from Huntington’s…

The Importance of a Spinal Tap in HD Research

I traveled last month to the University of Wisconsin-Madison to participate in an observational research study called PREVENT-HD. I’ve written about the importance of participating in trials, and the purpose of the PREVENT-HD study is to develop tools to find and track subtle, but measurable, changes in behavioral,…