“Find another oak to weather the storm with you.” — author Deepak Chopra I’ve always likened caring for someone with Huntington’s disease (HD) to navigating a storm, with waves of difficult times crashing over you. Eventually, the storm clears and the waters grow calm again, but you know…

Last November, our daughter, Alexus, who is gene-positive for Huntington’s disease (HD), got married to a wonderful man named René. The civil ceremony took place in a restaurant in Boston. It was short, sweet, and relatively uncomplicated — exactly what the newlyweds wanted. They also wanted a…

Several days ago, my wife, Jill, and I got a call from our daughter, Alexus. She wanted us to know she was getting two new cats. Alexus and her boyfriend just moved into a new home with the two cats she already owns. Because my wife and daughter…

About a week ago, my boyfriend and I treated ourselves to Qdoba for lunch. I am in love with their food, as most people in my life know, especially their queso and chips. They serve way more chips than anyone could…

I am a writer, and as such, I like to think of people as books. Either you are an open book or a closed one. Let me explain. My wife, Jill, and I have so many things in common that sometimes I forget that we don’t have a few things…

Narrative interventions can help provide support to individuals who are carriers of HTT gene mutations linked to Huntington’s disease, a study shows. The study, “Improving follow up after predictive testing in Huntington’s disease: evaluating a genetic counselling narrative group session,” was published in the…

My grandmother died from Huntington’s disease (HD) complications in 1987. I was 13 years old at the time, so my memories of her are few and limited to a time in her journey when she was more advanced in her symptoms. I have no personal recollections of what she…

Sometimes when you meet a person, there’s an immediate connection. Like kindred spirits, you become instant friends. When I attended my first Huntington Society of Canada National Conference, I met someone like that, and my mind opened to a new way of thinking. At the time, I was still…

A survey of 1,700 Huntington’s disease patients that questioned issues such as symptoms, treatment, and disease management, revealed some surprising facts that can impact how physicians and researchers view and treat the condition. Particularly, the survey revealed that patients often lack support during the diagnostic process. GeneFo is an…