Throughout May, Huntington’s Disease News is recognizing Huntington’s Disease Awareness Month with a variety of stories that represent different perspectives on life with Huntington’s that we hope help to inspire and empower our readers. These stories highlight some of the unique challenges of living with Huntington’s, as well as stories of hope, inspiration, and other topics that help to generate awareness among the Huntington’s disease community. Follow along with the series here or visit us on Facebook or Instagram using the hashtag #HDSpotlight

Huntington’s disease took so much from my family

Porcia White and her husband, Jamie, found out together the results of her genetic testing for Huntington’s disease. (Photos courtesy of Porcia White) This is Porcia White’s story: Huntington’s disease was a part of my life from an early age. My earliest memory was sitting against the wall…

The trauma of Huntington’s disease is shared by the family

Jennifer Ushe’s grandparents, Jean and Edward Moshier. (Photo courtesy of Jennifer Ushe) This is Jennifer Ushe’s family story: Both of my grandparents died 10 years before I was born: Grandpa, unexpectedly and tragically, of a heart attack, and Grandma, expectedly but no less tragically, of Huntington’s disease. My…

News

This awareness month, spotlight is on the patient experience

May is Huntington’s Disease Awareness Month, and this year the focus is on the patient experience. Huntington’s disease (HD) is a neurodegenerative disorder thought to affect 4.9 per 100,000 people worldwide, including about 41,000 U.S. residents, and can impact many aspects of everyday life. While each patient’s journey…