Traveling can lead to excitement and adventure, but for those of us with Huntington’s disease (HD), it can also pose significant challenges. Whether it’s navigating an unfamiliar airport or managing chorea (involuntary movement) or fatigue, the experience can feel overwhelming. I’ve found that traveling with Huntington’s requires…
HD in Color — Tanita Allen
Tanita Allen, from Cleveland, Ohio, was diagnosed with Huntington’s disease in 2012. As the first in her family with the gene, she has pursued her education while managing symptoms. She holds a diploma in paralegal studies, an associate’s in science, and a bachelor’s in public affairs (2022) from SUNY Empire State University.
In 2023, she published her memoir, “We Exist,” chronicling her journey to diagnosis. Her other advocacy work includes being featured in Forbes, podcasts, webinars, and public speaking. Tanita is currently working on her second book and earning a master’s at Notre Dame of Maryland University. She enjoys art, music, and travel. Learn more about Tanita at tanitaallen.com.
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Living with Huntington’s disease (HD) has taught me that food is not just about satisfying hunger. Food is energy. Food is stability. Food is comfort. And it is one of the ways I care for a body that is constantly working harder than most people realize. When people think…
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