HD in Color — Tanita Allen

Anxiety is a frequent companion for many of us living with Huntington’s disease (HD). Whether it’s the overwhelming stress of managing symptoms, navigating social interactions, or even planning for the future, anxiety can…

Music has always been more than just sound to me. It’s a lifeline. Living with Huntington’s disease (HD), I’ve faced physical challenges, emotional hurdles, and moments of deep introspection. During the most difficult…

Living with Huntington’s disease (HD) presents rare challenges, including managing symptoms that can affect physical, mental, and emotional well-being. One of the often overlooked aspects of maintaining health with HD is cultivating good…

In 2012, my life took an unexpected turn when I was diagnosed with Huntington’s disease (HD). The road to that diagnosis had been long and filled with confusion, but the moment…

Living with Huntington’s disease (HD) presents many physical hurdles, but the toll it takes on mental health is often overlooked. Many people, including myself, experience intense bouts of anxiety and depression as part…

Navigating a new diagnosis of Huntington’s disease (HD) is a profoundly personal journey through a range of emotions, from shock and disbelief to worry. I know this experience all too well. Reflecting on…

This October has been one of the most inspiring and empowering months of my life as a Huntington’s disease (HD) patient advocate. I had the incredible opportunity to participate in three major advocacy…

It caught me off guard when a dear friend asked me recently, “How can I help you?” It wasn’t because I hadn’t been asked this before in different contexts, but rather that I realized…

Dating can be a complex and emotional experience under normal circumstances, but for someone living with Huntington’s disease (HD), the journey to find companionship presents unique challenges. One of the most painful…

Traveling can lead to excitement and adventure, but for those of us with Huntington’s disease (HD), it can also pose significant challenges. Whether it’s navigating an unfamiliar airport or managing chorea (involuntary…

One of the most challenging aspects of living with Huntington’s disease (HD) is coming to terms with the progressive nature of the condition and the inevitable changes it brings. For those of…