Tanita Allen, from Cleveland, Ohio, was diagnosed with Huntington’s disease in 2012. As the first in her family with the gene, she has pursued her education while managing symptoms. She holds a diploma in paralegal studies, an associate’s in science, and a bachelor’s in public affairs (2022) from SUNY Empire State University.
In 2023, she published her memoir, “We Exist,” chronicling her journey to diagnosis. Her other advocacy work includes being featured in Forbes, podcasts, webinars, and public speaking. Tanita is currently working on her second book and earning a master’s at Notre Dame of Maryland University. She enjoys art, music, and travel. Learn more about Tanita at tanitaallen.com.
Living with Huntington’s disease (HD) presents many physical hurdles, but the toll it takes on mental health is often overlooked. Many people, including myself, experience intense bouts of anxiety and depression as part of this journey. Coping with…
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