HD in Color — Tanita Allen
Tanita Allen, from Cleveland, Ohio, was diagnosed with Huntington’s disease in 2012. As the first in her family with the gene, she has pursued her education while managing symptoms. She holds a diploma in paralegal studies, an associate’s in science, and a bachelor’s in public affairs (2022) from SUNY Empire State University.
In 2023, she published her memoir, “We Exist,” chronicling her journey to diagnosis. Her other advocacy work includes being featured in Forbes, podcasts, webinars, and public speaking. Tanita is currently working on her second book and earning a master’s at Notre Dame of Maryland University. She enjoys art, music, and travel. Learn more about Tanita at tanitaallen.com.
My public journey since my diagnosis of Huntington’s disease
My name is Tanita Allen, and in 2012, I received life-changing news: I was diagnosed with Huntington’s disease (HD), a rare, neurodegenerative condition. Huntington’s is rare enough as it is, but the belief that it doesn’t affect…
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