My sense of time has shifted. Part of this change is age-related: I will be 55 this year. When I was younger, I thought about what the future might bring. My dreams seemed so far away then, causing me to feel impatient at times. I am less rushed these days.
One of the more tragic aspects of Huntington’s disease (HD) is how the symptoms can begin to take control of a person in their prime adult years. There’s no cure or effective treatment available to us yet, so it’s like those of us who are gene positive for…
I have very little knowledge about cars — how they work, how they run, and most importantly, how to fix them. I need to find someone who does know how to fix my car if it ever breaks down. Since my automobile is such a vital part of my life,…
May is Huntington’s Disease Awareness Month in many parts of the world. It’s an excellent opportunity for those of us in the Huntington’s disease (HD) community to reach people who wouldn’t typically encounter this disease and share some understanding about the condition. There are many ways to raise…
Here’s the scene: My wife, Jill, and I are at Jill’s work. We’re on speakerphone with our daughter’s friend, who is at a hospital almost 1,000 miles away with three other friends and Lou, our daughter. (Lou is our daughter’s nickname.) The reason for the call is to listen in…
There is some evidence in the Huntington’s disease literature that suggests people with the gene may lack insight into how they have started to show signs of the illness. This terrifies me for several reasons, but for the focus of this column, I’ll discuss the possible effect this…
My wife, Jill, who has Huntington’s disease, is doing remarkably well. Most people in her shoes would be falling apart, but she is levelheaded about having it, and many are amazed when I tell them that she accepts her diagnosis. Think about that for a moment: She tolerates a…
It’s time for us to enter our Huntington’s disease (HD) time machine and travel back to the year 1872. It is here that we find Dr. George Huntington sitting in his clinic’s office handling a package. He runs his thumbs along the seam to ensure its closure, turns it…
“The Talk” has a very different meaning to most people than it does in our home. When our daughter was born, my wife, Jill, had a very clear wish that we would always be open and honest with our daughter about things. By “things,” Jill meant most everything. She wanted…
I’m sure the headline of this column made you look twice. No, that’s not a typo. You might be saying right now: “How could anything associated with Huntington’s disease make my life better?” I get it. I understand firsthand what a horrible condition Huntington’s disease (HD) is. It’s not…
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