Columns

Hi, 2021. How are you? You have much to live up to. Last year, a pandemic carpet-bombed its way into our lives. As a result, it woke many people up. Families cooped up together spent more time with one another. Life in the fast lane slowed down a bit.

Whoever named Operation Warp Speed, the U.S. government’s project to produce and develop COVID-19 vaccines safely and effectively, got it right. In doing research for this column, I came across words like “unprecedented” and “breakneck” to describe not only how fast it took a vaccine to be approved, but…

I have only known one way to live in a family affected by a rare disease, specifically Huntington’s disease (HD). That way is not to sit back and wait for HD to come, but rather to seek it out and attack! I don’t mean attack in a physical sense, of…

Thick rubber bands seem unbreakable. It takes effort to pull each end. In contrast, breaking a thin rubber band takes little effort. This is how my wife, Jill, summarized the current state of the world the other day. It seems like we all start out as…

So … December is finally here. It’s the last month of the longest year ever, as far as I’m concerned. As I write this, it’s extremely cold and gray outside. Oh, sun, where are you? Warm weather, where are you? End of the pandemic, where are you? The holidays…

I usually write about what life is like as a caregiver, along with my observations about how Huntington’s disease (HD) affects my family. I’ll do that in today’s column, too, but I’ve added a creative twist by writing a short play. It has two characters:…

Editor’s note: This column briefly mentions the topic of suicide. Please find resources for help at the end of the column. Unlike many rare genetic disorders, Huntington’s disease doesn’t have an approved treatment regimen that will halt, stop, or slow disease progression. However, it is relatively simple to undergo a…

Two years ago, my wife, Jill, took a genetic test and discovered she has Huntington’s disease. Thanksgiving wasn’t the same that year. Last year, two events occurred that made me feel as though Mike Tyson had punched me in the gut: My daughter took a genetic test and found…

As I briefly touched on in my previous column, “Opportunities for a Better Genetic Testing Process,” the testing process in the Huntington’s disease community is a bit like the Wild West. Depending on your location, there are so many variables that make going through testing way more stressful than…

At some point in the history of mankind, someone said, “Let’s raise awareness about [topic A].” And because “imitation is the sincerest form of flattery,” as Oscar Wilde noted, someone else said, “Hey, if they can raise awareness about [topic A], let’s celebrate our favorite topic.” Now, January is…