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Our dad, David Roy Field, would’ve celebrated his 72nd birthday this February. I often wonder what he would’ve thought of our current family life if he were still with us today. We lost Dad to Huntington’s disease in May 2020. My brother, Gavin, was recently diagnosed…

“Yesterday/ All my troubles seemed so far away/ Now it looks as though they’re here to stay/ Oh, I believe in yesterday/ Suddenly/ I’m not half the man I used to be/ There’s a shadow hanging over me.” My dad and I loved listening to the Beatles’ “…

“Find another oak to weather the storm with you.” — author Deepak Chopra I’ve always likened caring for someone with Huntington’s disease (HD) to navigating a storm, with waves of difficult times crashing over you. Eventually, the storm clears and the waters grow calm again, but you know…

The notion of tradition is on my mind because we recently celebrated Christmas. Tradition comes from a Latin word meaning “to hand over” or “to hand down.” Sometimes family traditions are fun and wonderful, such as weekly game nights or favorite dinners like Taco Tuesdays. But others are ones…

“See you in heaven one day” is a line from one of my dad’s all-time favorite songs, which I have recently been revisiting.  By 2020, my dad had been in nursing homes for almost six years, suffering from late-stage Huntington’s disease. He’d been having…

As I descended a country lane through the valley this morning on my way to work, storm clouds that had gathered began to clear, revealing a blue sky. Daffodil sprouts appeared in the hedgerows. The sun shone across the fields, highlighting the remaining autumnal colors, and then streamed through the…

During a recent walk in our neighborhood, my wife, Jill, and I admired the colors of the leaves on the trees while enjoying the mild winter weather we’ve been experiencing. We talked about our love-hate relationship with trees, leaves, and yardwork, and how Huntington’s disease progression affects…

My brother, Gavin, was diagnosed with Huntington’s disease in January 2022, at the age of 42. The disease took our dad’s life in May 2020, when he was 68. So far, it has affected four generations of our family. As we enter a new year, I’m reflecting…