A Family Tradition - a Column by Carlos Briceño

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Carlos is a journalist in the Midwest, who through the grace of God has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

Even Caregivers Need Help Sometimes

Happy New Year! Now that 2021 is in the rearview mirror, I have a simple wish for 2022: a cure for Huntington’s disease, which my wife and daughter are gene-positive for. As much as I hope for that, I also spend a lot of time thinking about taking…

Mental Videos Make the Memories Come Alive

Years ago, as watching videos on the internet became more popular, I realized I needed to broaden my skills as a print journalist to compete and thrive in a rapidly developing multimedia world. So, I took a course at the Poynter Institute that taught me how to tell a…

Love Is Stronger Than Huntington’s Disease

By the time you read this, an important day in my family’s life will have occurred: Alexus, our only daughter, got married on Nov. 25. She and her now husband, René, met in their senior year of college and have built a beautiful life together since then. They decided to…

Our Home Is a Potential Danger Zone

We live in a house with hardwood floors and three flights of wooden stairs. For my wife, Jill, who is gene-positive for Huntington’s, and our dog, this setup is a danger zone. Let me explain. The floors are beautiful, but they are slippery. We are reminded of how…

My Wife, Her Father, and Driving With HD

This past summer, I had to take my car to a mechanic. It had logged more than 122,000 miles and needed some major work done to it. My wife, Jill, went with me but she drove her car so I could leave mine at the mechanic’s shop, which…

Let’s Do More to Fight Huntington’s Disease

It’s not enough. That’s what I kept thinking when my wife, Jill, and I were watching the 7th Annual Freeze HD virtual event on Oct. 16. This entertaining and emotional benefit featured a silent auction, music performances, and celebrities who shared how Huntington’s disease (HD) has affected family members…