Our peaceful neighborhood was recently shaken by an unexpected tragedy. Our neighbors across the street, in the midst of renovating their roof, watched helplessly as a single spark from a power saw ignited a fire that caused extensive damage to their home. As I stood with my wife, Jill,…
A Family Tradition - a Column by Carlos Briceño
As a caregiver to my wife, Jill, who is gene-positive for Huntington’s disease, I’ve learned that helping isn’t always as straightforward as it seems. Recently, as I watched her face scrunch up in frustration while she looked at her to-do list, I reminded her that she could…
It’s been a hot summer so far, which isn’t the greatest weather for my wife, Jill, to deal with. She is gene-positive for Huntington’s disease, which causes her to have difficulty regulating her body temperature. But recently, a rainstorm was followed by a soft, summer breeze…
As my 60th birthday approaches in August, my wife, Jill, and our daughter, Alexus, have decided that we must celebrate in a special way. Because our schedules are free in mid-July, we’ll be getting together soon instead of next month. However, instead of throwing a party, they have…
In our quiet moments together, my wife, Jill, often shares her deepest thoughts with me. Recently, one such conversation left a profound mark on my heart. Jill’s Huntington’s disease has shaped our lives and made every moment precious, but her perspective on the journey is a constant source…
As a father, I’ve had many moments when I was proud of my daughter, Alexus. I’m proud of her love of helping others; of her acceptance into one of the top schools in the world, the Massachusetts Institute of Technology; of how deeply she loves to enjoy life.
A Pollyanna is someone who maintains an optimistic perspective, even in the face of difficult situations. As a cup-half-full kind of guy, I like being positive. However, it’s essential to find balance, especially when dealing with mental health or other significant issues. Toxic positivity can be naive…
Fifteen years of marriage have taught me that compromise and understanding remain at the heart of a strong relationship. These elements have become more important since Jill’s diagnosis of Huntington’s disease in 2018. As I reflect on our life since then, I realize how much we have grown individually…
Throughout her journey with Huntington’s disease (HD), my wife, Jill, has taught me a great deal about resilience, love, and understanding. One of the most profound lessons has been her empathetic approach to conflict. Jill has a remarkable ability to step back and try to understand the other…
In a world full of negativity, positive reinforcement is a welcome practice. I’m lucky to be part of a family where it is encouraged and implemented. The process has shaped me into a better husband and caregiver to my wife, Jill, who is gene-positive for Huntington’s disease. Jill…
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