A Family Tradition - a Column by Carlos Briceño

vote, white coat syndrome, protective, show, details, unexpected, party on, choose, outside the box

Carlos is a journalist in the Midwest, who through the grace of God has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

How to be present while grappling with grief

For years, my wife, Jill, had asked me to watch a TV show she thought I’d love. I spent all of that time saying no, but this year, I finally broke down and watched “The Sopranos.” As it played, I found myself reflecting on something profound: Grieving doesn’t get…

Some advice to the HDSA as it searches for its next leader

Who will become the next president? I’m actually talking about the next president of the Huntington’s Disease Society of America (HDSA), the largest public nonprofit organization dedicated to improving the lives of people affected by Huntington’s disease (HD) through research, education, and advocacy. Louise Vetter served…