Rare Disease Day 2023
Recent Posts
- High huntingtin protein levels in saliva linked to worse disease
- I finally understand why hearing is important as a caregiver
- Aitia and UCB team up to develop novel Huntington’s treatment
- Huntington’s disease progression makes math hard for my wife
- What is a CAP score, and how do I calculate it?
- Machine learning may help in predicting likely rate of progression
- Moving past disappointment when life doesn’t go as planned
- New Phase 2 trial of tominersen enrolling people at early stages
- Answering questions has gotten harder for my gene-positive wife
- Genetic testing for Huntington’s is more than a simple coin toss