While the Huntington’s Disease Society of America (HDSA) is pleased a U.S. House of Representatives subcommittee recently held a…
Articles by Mary Chapman
The Cleveland Team Hope Walk & 5K Run is on tap for Aug. 15 to raise funds to help the…
At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases…
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes…
Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual…
U.S. lawmakers have again introduced legislation that would speed up the process for Huntington’s disease (HD) patients to get…
Activities are underway worldwide to mark Huntington’s Disease Awareness Month, set aside each year to call attention to the neurodegenerative…
An alliance of Huntington’s disease (HD) organizations in the U.K. is calling for patient contributions to a project that…
With some recent additions, the Huntington’s Disease Society of America (HDSA) has expanded its Centers of Excellence program…
Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1,…