Carlos Briceño,  —

Carlos is a journalist and director of communications who, through the grace of God, has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

Articles by Carlos Briceño

‘Congress, Hear Our Plea! Pass the HD Parity!’

Shouting is a fantastic way to get someone’s attention. That’s why I propose we shout to get the attention of the U.S. Congress. Because May is Huntington’s Disease Awareness Month, my wife, Jill, who is gene-positive for Huntington’s disease (HD), came up with a video challenge to raise awareness…

Acceptance of Suffering Can Lead to Transformation

The weather where I live in Maryland has been cold, gray, and rainy lately. A steady diet of warm, sunny weather remains a distant memory. The full glory of spring is on hold, as many trees and flowers have restrained themselves from blossoming into a full palette of colors. Days…

The Power of a Smile and Kind Words

I recently shared with my wife, Jill, a saying I read in a store: “A smile and some kind words can really change someone’s day.” Jill smiled and said she knew the power of that saying because she had witnessed it years ago. The story she told me unfolded during…

Fair and Unbiased Courts Help Protect Disability Rights

My wife, Jill, works from home doing freelance jobs. Because she works remotely, she can watch television during the day from the comfort of our living room. The recent confirmation hearings in the U.S. Senate for Supreme Court nominee Judge Ketanji Brown Jackson kept Jill transfixed as she pondered…

For HD Families, Survivor’s Guilt Is a Heavy Burden

As everyone who reads this column knows, Huntington’s disease (HD) is a devastating illness for those who test positive on a genetic test. But it can be equally terrible for family members who test negative. I’m referring to survivor’s guilt, which happens when someone feels guilty for surviving a…