Author Archives: Carlos Briceño

Let’s Do More to Fight Huntington’s Disease

It’s not enough. That’s what I kept thinking when my wife, Jill, and I were watching the 7th Annual Freeze HD virtual event on Oct. 16. This entertaining and emotional benefit featured a silent auction, music performances, and celebrities who shared how Huntington’s disease (HD) has affected family members…

Patience Is a Requirement for Good Caregiving

My wife, Jill, who is gene-positive with Huntington’s disease (HD), is a born caregiver. It’s one of the reasons I fell in love with her. I watched her take care of her father, who also was diagnosed with HD, as he started to decline physically and mentally. It was an…

The People Involved in Freeze HD Warm My Heart

On Saturday evening, my wife, Jill, and I will be putting on our fancy party clothes to attend the 7th Annual Freeze HD virtual event. The benefit will feature celebrities, music performances, and a silent auction, with the goal of raising money for the Huntington’s Disease Society of America.

Wondering About ADHD and Huntington’s

Earlier this year, I wrote that I was dealing with attention deficit hyperactivity disorder (ADHD), but didn’t realize it until my wife, Jill, pointed it out to me. Today, with her permission, I’m turning the spotlight on her. My wife has always admitted that she suffers from ADHD,…

Handling Life’s Fragility With Care

In late July, before my nephew, Dylan, moved to the Georgian capital of Tbilisi, in the Caucasus region, for several months, I played several songs for him while we were in his car. One of them was a live version of “Fragile” by Sting. I know Dylan’s taste…

My Wife’s Family Is Huntington’s Strong

Huntington’s is a strange and deadly disease. It’s not like cancer. Only 5-10% of cancer is hereditary, and what’s passed down is the abnormal gene that can lead to cancer, not the cancer itself. It’s not like heart disease. Certain risk factors, such as high cholesterol, can be…

Waving Goodbye to Toxic Relationships

For more than two years, I have shared my family’s journey with Huntington’s, including learning about the disease, living through my wife and daughter testing gene-positive, and working to accept their diagnoses. This time, I want to share some advice from Jill, my wife: Let go of people who are…