Getting the Huntington’s disease genetic test is a major life decision that weighs heavily on a person socially, emotionally, psychologically,…
B.J. Viau
B.J. Viau (View) has been a Huntington’s disease (HD) advocate since his mom’s diagnosis in 1995. B.J. co-founded the HD Youth Organization (HDYO) and most recently in 2022 he launched HD Genetics, which offers a new option for individuals to undergo genetic testing for HD. Professionally BJ has been working in the pharmaceutical industry for the past 10 years in various positions. He lives in Charlotte, North Carolina, with his wife and two kids. He hopes this column sparks new ideas and challenges people's thinking to help the HD and rare disease community.
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Articles by B.J. Viau
As I wrote in a previous column titled, “An Abundance of Huntington’s Disease Info Awaits at Upcoming Virtual Conferences,”…
In a previous column, I talked about the many questions one might have when signing up for a clinical…
Every day, people around the world learn more about Huntington’s disease (HD). We know so much today, but we will…
There is a robust pipeline of potential therapies for Huntington’s disease (HD), which I’ve discussed in previous columns.
I’ve lost two moms in my lifetime. My biological mom, Debbie, who was with me for the first 23 years…
I have only known one way to live in a family affected by a rare disease, specifically Huntington’s disease (HD).
Editor’s note: This column briefly mentions the topic of suicide. Please find resources for help at the end of the…
As I briefly touched on in my previous column, “Opportunities for a Better Genetic Testing Process,” the testing process…
I’ve always tried to stay alert to the needs of the Huntington’s disease community by listening during support groups, learning…