Always Looking Forward
— Alexus Jones

One afternoon in May, I got a call from a number I didn’t recognize, and I rejected it immediately. Given the number of spam calls today, I wouldn’t normally log that in my memory, but…

Last weekend, I had a bunch of newly vaccinated friends over to help me paint my new condo. My partner and I had just closed on it two days earlier, and I was excited to make the…

I’ve written before that I was unsure if I was ready to get involved in Huntington’s disease community events. It’s been difficult for me to determine if the emotional cost is worth…

I learned about my mother’s Huntington’s diagnosis and my own risk during my senior year of college. I was devastated by the news, which exacerbated my anxiety. At the time, I had a therapist who…

Having a parent with Huntington’s disease influences my life in many ways, most of which I’m likely unaware of. It influences everything from my plans for the future to how I view the world.

I like to keep things organized. Everything should have a place, even if it’s on the floor next to my bed, like my clothes. Even my problems have a place: Each one has a…

When I was a sophomore in college, I debated going blond. It was January, and every winter, I usually cut or dye my hair. I always need a change of pace during winter. Normally, I go with…

On Saturday, the last season of the Netflix series “The Good Place” began streaming. To me, it was the best ending of any TV show I have ever seen. My boyfriend and…

This week, I have my first therapy appointment in a while. I hope therapy will give me a structured place to talk about Huntington’s with someone not impacted by it. While my coping strategies have worked so…

About a week ago, my boyfriend and I treated ourselves to Qdoba for lunch. I am in love with their food, as most people in my life know, especially their queso and…

I have been working from home since March and likely will continue to do so until next summer. Persephone, my first cat, has loved this. She’s always been pretty needy, mostly because of her extreme fear of…