7 ways I practice self-compassion while living with HD

Living with Huntington’s disease (HD) is a journey filled with ups and downs, uncertainties, and moments that test our mental, emotional, and physical strength. Over the years, I’ve realized that practicing self-compassion isn’t just beneficial — it’s necessary. When the world feels heavy, or when my symptoms remind me of the challenges I face, these practices help me stay grounded, hopeful, and kind to myself.

The following are seven ways I prioritize self-compassion while living with HD:

1. Acknowledging my emotions without judgment: One of the first lessons I learned about self-compassion was allowing myself to “feel” without judgment. HD brings a roller coaster of emotions — fear, frustration, grief, and even guilt. Instead of suppressing these feelings, I give myself permission to experience them. I tell myself it’s OK to feel sad today or it’s natural to feel frustrated by these challenges. Recognizing that my emotions are valid allows me to release them instead of letting them linger.

2. Adapting to my changing abilities: Living with HD means my abilities aren’t static. They shift over time. Some days I can accomplish more than I expected; other days, even simple tasks feel monumental. I practice self-compassion by meeting myself where I am. If I need to take a break or use tools like psychotherapy, I remind myself that adapting is not a failure, but rather a form of strength. I embrace my current reality while giving myself grace for what I can’t control.

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3. Setting boundaries for my well-being: Boundaries are a cornerstone of self-compassion. Whether it’s saying no to social events when I’m tired or limiting discussions about my health with people who don’t understand, I’ve learned to protect my peace. Setting boundaries isn’t about pushing others away — it’s about creating a safe space for myself. By prioritizing my energy and mental health, I show myself the respect and care I deserve.

4. Practicing mindful meditation: Mindfulness has been a game changer for me. When my mind races with worries about the future or when my symptoms feel overwhelming, I turn to meditation. Guided practices from Deepak Chopra help me stay present. Instead of focusing on what I can’t control, I anchor myself in the moment. Meditation doesn’t erase my challenges, but it does give me the tools to face them with calm and clarity.

5. Finding joy in small moments: Self-compassion also means seeking and embracing joy, even in the little things. Whether it’s watching a comedy or savoring a warm cup of tea, I’ve learned to cherish simple pleasures. HD can make life feel heavy, but finding moments of light reminds me that there’s beauty even in the midst of difficulty. I practice gratitude for these moments, which helps shift my focus from what I’ve lost to what I still have.

6. Reframing negative self-talk: Negative self-talk can be one of the biggest obstacles to self-compassion. In the past, I would berate myself for not being as productive or for needing help. Now, I challenge those thoughts. Instead of saying, “I’m not good enough,” I tell myself, “I’m doing my best, and that’s enough.” Reframing my inner dialogue has been transformative, helping me treat myself with the kindness I would offer a dear friend.

7. Connecting with my community: Isolation can be a breeding ground for self-doubt, so I actively seek connection with others who understand the HD journey. Whether it’s attending support groups, engaging with the HD community online, or leaning on close friends and family, these connections remind me that I’m not alone. Sharing my experiences and hearing others’ stories is both validating and comforting. It’s an act of self-compassion to allow myself to be seen and supported.

Embracing the journey

Practicing self-compassion isn’t about being perfect — it’s about showing myself grace in a world that often demands perfection. It’s a daily practice that requires patience and intentionality. Living with HD has taught me that compassion starts within; it’s the foundation that allows me to navigate life’s challenges with resilience and hope.

If you’re living with HD or any other chronic illness, I encourage you to explore your own self-compassion practices. It’s not always easy, but the kindness you show yourself can make a world of difference. Remember, you’re deserving of the same love and care that you so freely give to others.

Note: Huntington’s Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Huntington’s Disease News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to Huntington’s disease.