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Huntington’s Disease News is providing virtual coverage of the 2024 Annual Huntington’s Disease Society of America Convention taking place May 30-June 1 in Spokane, Washington. Stay tuned to this page for all the latest news.

News

HDSA 2024: Huntington’s disease clinical trials enrolling in US

Clinical trials testing either tominersen, an experimental therapy designed to target the underlying cause of Huntington’s disease, or dalzanemdor, an oral candidate that aims to improve cognitive abilities, are currently enrolling Huntington’s patients in the U.S. Updates on the therapies’ clinical programs were provided by representatives of their…

News

HDSA 2024: Community urged to participate in observational studies

The Huntington’s disease community was encouraged to step up and get involved in observational studies to help scientists better understand the neurodegenerative disorder and accelerate the development of potential treatments. Participating in research “is the greatest thing that we can do to help expedite treatments for HD [Huntington’s disease],”…

News

HDSA 2024: Staying active with Huntington’s improves use, fitness

Establishing exercise routines and getting support from care partners can help people with Huntington’s disease stay active and maintain their mobility and function. In the past decade, new research on the effects of exercise has shown conclusively that aerobic exercise can help patients improve their fitness and motor…

News

HDSA 2024: Talk therapy can help to navigate life with Huntington’s

Psychotherapy — talk therapy with a professional to help a person manage their emotional state and mental health — can be of benefit to people with Huntington’s disease, though finding the right therapist can require some “shopping around.” That’s according to Spencer Diehl, a licensed clinical social worker/therapist at…

News

HDSA 2024: Doctor shares tips for sleeping well with Huntington’s

For people with Huntington’s disease who are struggling to get a good night’s sleep, establishing good sleep hygiene — setting habits such as a regular bedtime routine and maintaining a cozy, dark sleeping space — may help. Other potential ways to improve sleep include treating those Huntington’s symptoms…

News

HDSA 2024: Study cites need for family psychological support

There’s a sore need to provide more psychological support to people living with Huntington’s disease and their families, not only around the time of testing and potential diagnosis, but throughout the different stages of the disease, according to a study released at the 2024 Huntington’s Disease Society…

News

HDSA 2024: CEO shares optimism for Huntington’s community

The outlook for the Huntington’s disease community has never been brighter, with better care options and promising new research already in progress, the president and CEO of the Huntington’s Disease Society of America said at the organization’s 39th annual convention, taking place in Spokane, Washington. “There has never…

News

HDSA 2024: Convention offers opportunities to learn and connect

The 39th annual convention of the Huntington’s Disease Society of America (HDSA) is launching this evening for “three days of education, support and camaraderie!” The convention, which runs from May 30 to June 1, offers many opportunities for attendees to learn about Huntington’s disease and to connect…

Recent Posts

  • Faulty cellular waste disposal system may drive Huntington’s: Study
  • What the holidays mean when living with Huntington’s disease
  • $12M grant will back first trial of stem cell therapy for Huntington’s
  • A tribute to the kindness of strangers in life with Huntington’s
  • How to support someone who is planning for future care
  • Antipsychotics improve functional capacity, independence in HD
  • Despite dwindling resources, hope endures among researchers
  • The ‘invisible’ symptoms of Huntington’s that people don’t see
  • Genetic variant delays Huntington’s onset by up to 23 years: Study
  • Watching Huntington’s switch roles in our marriage was jarring


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