Tanita Allen, who lives in Cleveland, Ohio, was diagnosed with Huntington’s disease in 2012. Her approach to future care makes tough transitions easier for loved ones.
Transcript
The logistical resources that I have in place is that I’ve created a healthcare proxy. I was diagnosed in 2012 so my healthcare proxy and my will has changed significantly over the years.
But I’m in the process of revising my will; my healthcare proxy always changes, sometimes, little things like: Do I want a feeding tube? Do I not want a feeding tube? Should I ever get in that situation? That’s an example. Do I want to be in a nursing facility?
And I’ve actually been doing research on that as far as like places that are able to care for people with our needs — having HD.
My mom is actually in a facility that I am looking into for myself, should I ever need those services or that level of care. They’re taking great care of my mom, and I’m thinking that I probably would be taken care of well there as well.
