Tanita Allen, who lives in Cleveland, Ohio, was diagnosed with Huntington’s disease in 2012. She shares several HD organizations that have supported her journey and may help others, too.
Transcript
I would just say that additional resources and tips would be, really delving into different HD organizations. Like, for example, there are—there’s HDYO. There’s HDSA. There’s HELP for HD. There’s Help Cure HD.
I mean, there’s so many amazing organizations — HD Reach — amazing organizations that are geared towards specific areas in your life regarding your journey with this disease.
For example, HD Reach is a book club for people to get together and share every month with each other in the HD community. HDYO is a youth organization for people that are younger with Huntington’s or are coming from a family with Huntington’s disease or at risk. That’s a great organization.
Of course, HDSA is awesome because they help with research and they have grants. Help Cure HD is if you’re in the process of — maybe you want to have a family or you’re starting a family and you want a child to go — and you want to go through the IVF process to PGD to help with the selection of the gene so that you don’t have a child with that gene. That’s a great organization, Help Cure HD.
So these are some wonderful resources that are amazing in the HD community that are out there for you to be a part of and to obtain services from.
